What overcoming a milk allergy means to my family

DSC04346By Robyn Nasuti

What does being able to tolerate cow’s milk protein mean to my milk allergic family?

  • It means Cheetos, Doritos, yogurt, pizza, Smart food, chicken parmesan and ice cream, but those are the obvious answers.
  • It means using hand soap without worrying whether or not it has milk in it.
  • It means no more separate pizza stones and pizza slicers.
  • It means buying school lunch with friends.
  • It means eating in a restaurant without stomach-turning fear.
  • It means movie theater popcorn.
  • It means vacation without locating the nearest Emergency Room before we go.
  • It means I can buy the shampoo I used before he was diagnosed with a milk allergy.
  • It means caramel candy coated apples in the fall.
  • It means buying junk food at the carnival.
  • It means milking a cow at our friend’s dairy farm in New Hampshire.
  • It means re-booking that cancelled trip to Mexico, because they couldn’t feed him at the hotel.
  • It means Boy Scout camping and school field trips (without mom or dad chaperoning every trip).
  • It means sitting at a table and not having to wash it because he’d get hives if milk was present.
  • It means going to a friend’s birthday party and they don’t have to put away the Doritos and chocolate candy when you arrive. It means taking home the goody bag and eating the candy rather than giving the food to his sister.
  • It means we don’t have to swap out every single candy at Halloween.

But most important, it means I can kiss him and not have to stop and think about what I ate and run to brush my teeth first.

In a single word….it means FREEDOM!

3 thoughts on “What overcoming a milk allergy means to my family

  1. This gives me chills. What a way to put it into words. Thank you Robyn for sharing Brett’s story. My daughter (5 years old) will start a baked milk study in 2 weeks. Following Brett’s story has given me more confidence as our first challenge day gets closer.

  2. This is what I have been searching for, for 11 years now. My daughter Kayla 12 is allergic to diary, nuts, fish and shellfish (beef can give her a bad stomach ache). When I heard Brett say that he would do anything to outgrow his milk allergy, it broke my heart; because Kayla has said that many many many times. Brett, congrats to you and for being sooo brave on such an uncertain journey. Robyn, I would love to somehow contact you and speak w/ you regarding this research. I called Childrens and spoke w/ Lisa regarding Bretts study but, the laws she won’t allow her to provide w/ much information. I’m curious what Bretts IGE levels were and past reactions to milk. I’m sure you are being inundated w/ requests, however, if you should find the time to talk or email Brett’s story I would be very grateful. My life’s mission is to somehow help Kayla before she really starts to venture out on her own (scarey thought). I cried happiness for Brett and your family b/c I live the allergy everyday as well. I don’t really know anyone else w/ the severe dairy allergy. My niece 13 outgrew her milk allergy, so I have hope for Kayla at somepoint. It’s just hard to believe that Xoliar actually cured Brett from having any reactions, amazing. In the meantime be well and congratulations.

  3. This sounds like me! It really stinks to have allergies like this. I can get sick from something as simple as using a knife previously used to cut something with cheese. And my allergies do not just cause discomfort – they mess with my breathing, throat (swells), and then I’m out of it for hours. The effects last for days so it’s not a laughing matter.

    I would love to know how to live life to the fullest again without having to worry each time I eat.

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