What Boston Children’s families are thankful for

Happy Thanksgiving! We recently asked our patient families what they were most thankful for this year, and the responses we received were heartfelt and beautiful. However you spend this special week—celebrating Thanksgiving, Hanukkah or both—we hope you’re able to find a few moments of peace for yourself and your family, and together enjoy the things that you’re thankful for.

I’m thankful for the cardiac team that kept my baby healthy before and after her emergency Tetralogy of Fallot repair this month! Could not have asked for better caregivers for my baby girl!

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This year, my family is thankful for a happy, inquisitive, sweet, quirky, loving, (but most importantly healthy) toddler! A year ago, we questioned what life would be like after his Hirschsprung’s Disease diagnosis and THANKS to Boston’s Children’s Hospital we get to share and enjoy life with our wonderful little boy! We can’t wait to see what his future holds!

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I’m thankful that Boston Children’s Hospital helped me go from 400 pounds to 235 pounds and still losing! Without the weight loss, my son would have never been conceived.

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We are thankful to be Boston Children’s Hospital parents, because they saved our son’s life. Boston Children’s was involved with his heart even before he was born, as he had a fetal intervention when I was 29 weeks pregnant. They handled the surgery and procedures after birth, and now he is a thriving little four-year-old boy.

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I’m incredibly thankful for the amazing and knowledgeable staff at Boston Children’s. They reassured us every step of the way that our son was going to be in the best hands! His cystic kidney is still being monitored, and not a day goes by that I am not grateful for the resources we have been provided. We are eternally filled with gratitude for our beautiful, healthy son.

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We’re thankful for Dr. Breitbart and Dr. Emani for saving our son’s life by giving him the best care and bi-directional Glenn surgery we could have imagined. We’re also thankful to the CICU and 8 East nurses for being so attentive, thankful to have a hospital with such an upbeat atmosphere that we were able to live in for several weeks. Most of all, we’re thankful to Boston Children’s for making our son’s life possible.

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I’m thankful that Boston Children’s Hospital was around when I was a child, or I might not be here now to celebrate with MY son! Best hospital ever.

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It was Thanksgiving week in 2011 when my son had open-heart surgery to treat his Tetralogy of Fallot at Boston Children’s Hospital. No words can express how grateful we are to Boston Children’s, the CEO, the board, Ms. Beth Volk, Dr. Baird, Dr. Brown and to all the nurses and staff. You saved our boy’s life. We thank God for you…

Our son is now a healthy and very active 3 year old enjoying life like normal children.

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 We are thankful for the wonderful nurses and doctors, and especially Child Life specialists—they have helped my 5 year old through some scary times these last few months. We are also thankful for one particular nurse in the Motility and Functional Gastrointestinal Disorders Center who has been there answering any question we have had.

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We’re thankful for the incredible medical staff that made us feel at ease and at home during our son’s two hospital stays in the CICU and Cardiac wing when he was 6 months and 8 months old. We felt as though we always had someone to lean on. We are thankful that Dr. Rahul Rathod and Dr. Pedro del Nido gave our son a chance to have the same opportunities other kids have at his age. Here he is just six days after open-heart surgery.

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Our daughter began the first 10 weeks of her life as a patient at Boston Children’s in 2012. She was more than well cared for by the team on 10 East and continues to be followed by the incredible Dr. Craig Lillehei, Dr. Benjamin Warf and Dr. Joseph Borer. The access we continue to have to each of them (and their teams) is invaluable. Today our daughter is 17 months and thriving. And even though she had some serious physical delays and spinal cord issues she is taking her first independent steps this week. We are beyond thankful to Boston Children’s Hospital.

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We are thankful for all the amazing folks who make miracles happen at this special place. Thank you!

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We are thankful and forever grateful to Dr. Shamburger, his team, the nurses and staff and Boston Children’s who took such wonderful care of our little boy last January.  We 100 percent feel we made the right decision in flying from Louisiana to Boston for our son’s surgery.

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On May 20, 2009, our son was born with transposition of the great arteries. We had no knowledge of his heart defect until he was born. Soon after, we arrived at Boston Children’s Hospital, where he was stabilized and then at 5 days old had open-heart surgery. We are thankful for each and every doctor, nurse and specialist that has been a part of his journey. He’s now 4 years old, and is a happy, loving, energetic boy who attends preschool.

Thank you Boston Children’s Hospital!  Happy Thanksgiving!

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Our son was diagnosed with mid-ortic syndrome at 8 weeks old. I can’t say enough about all the staff and the medical care our son receives. We have a wonderful team of physicians who truly care about my son and our family. In fact, just this morning I received a call from Dr. Christopher Weldon, calling to check in and let us know all his tests came back great. It’s really nice to hear and be reassured that if we have any issues in the future we can call and talk with his doctors. We have a good relationship with them, and we are thankful for all of them: Dr. Weldon, Dr. Ferguson, Dr. de Ferranti, all the nursing staff and everyone in between for making a visit to the hospital a pleasant one. Happy Thanksgiving to all.

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This year, we are again THANKFUL for Boston Children’s for helping to save our son’s life. He was diagnosed with pre-B acute lymphoblastic leukemia in 2009 and nearly four years later he is doing great!

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We couldn’t be more thankful to Boston Children’s Hospital. They took our little boy into their hands from the day he was born and diagnosed with Tetralogy of Fallot. They watched over him (and us!) until he was 2months old and his heart was big enough for open-heart surgery. Dr. Yurasek helped us feel safe, Dr. Emani performed his life-saving surgery and all of the nurses in the CICU helped him on his journey to recovery. Today, a year and a half later, my son is still being followed by all of the cardiac doctors, researchers and neurodevelopment team (not to mention the Gastroenterology and Otolaryngology doctors) to make sure he is thriving! We are truly thankful that Boston Children’s showed us such compassion, and helped us on our journey so that we are a happy and HEALTHY family of three! We are so lucky that we are being taken care of by the BEST!

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I’m thankful to Boston Children’s for our son’s team of doctors—Dr. Lang, Dr. Watters, Dr. Kharasch, Dr. Jennings and Dr. Sparks—and the nurses and staff who have given us the most precious gift: a happy, healthy little boy. He will be able to actually eat his first Thanksgiving dinner this year, no tracheostomy, no heart monitor, no need for a G-tube!

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Grateful doesn’t begin to describe how we feel about Dr. Benjamin Warf and his team in Neurosurgery. In April 2012, we flew from Virginia to Boston for my daughter, who had just been discharged from the NICU after being born at 24 weeks and six days, to have the ETV/CPC surgery for her hydrocephalus. Dr. Warf is a brilliant, talented surgeon but also other things that you may not normally find in a neurosurgeon—kind and compassionate. His staff, especially assistant Kerrilee, made the travel and the scheduling of surgery, our stay and many subsequent checkups as easy as possible. Our daughter is now healthy, happy, walking, talking and shunt free…things that may not have been possible had we not come to Boston Children’s. We are incredibly, wholeheartedly grateful.

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I’m thankful for all of the doctors and nurses in the CICU as well as Dr. Emani. Each and every one of them contributed to my daughter current health and happiness. She was inpatient for eight months, and now she is a thriving 3 and a half years old who attends preschool, loves the pool, her iPad, music and books! Thank you so much for all that you’ve done. We love you from the bottom of our “hearts”!

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We are thankful that Boston Children’s understands the balance between brilliant science and humanity. Our daughter is never a number, or just another patient.  Her talented doctors and all the caregivers prioritize clarity of all details to ensure that no question is ever unanswered.  Fear is allowed and understood, but tempered by imparted information and knowledge.  We are awed and thankful.

*photo was taken the eve of her 3rd open-heart surgery -the most appropriate fortune cookie ever!