Stories about: volvulus

Whatever it takes: Fighting for Michael

Michael doesn't let short bowel syndrome keep him from enjoying sports

Michael stood at the top of the hill, staring down at the glittering white snow. The prospect of skiing to the bottom was scary — on previous trips, he’d refused to try, worried that he would fall. But this time was different. He was ready to take a chance. Attempting to balance without using poles, he pushed himself forward and glided through the powder as his family cheered him on. By the end of the day, the 8-year-old had sailed down the slopes five times, all by himself.

The accomplishment was even more meaningful for his parents, Bill and Lisa Smith, who have watched him fight to survive — and thrive — since he was an infant. “He had some issues with spitting up and turning blue and was diagnosed with acid reflux when he was about a month old,” says Bill. “But we had suspicions that something else was wrong.”

Read Full Story | Leave a Comment

Reena’s story: A bright future with short bowel syndrome

Reena doesn't let short bowel syndrome define her.

She’s just 16, but Reena Zuckerman knows exactly what she wants to be doing in another 10 years. “My dream is to play on the press team in the annual Women’s Congressional Softball Game,” says the aspiring political journalist. Since 2009, the event has pitted members of Congress against the press corps, raising nearly a million dollars for charity. “When I’m not doing schoolwork or watching TV, I’m listening to political podcasts and NPR,” Reena confesses.

It’s an impressive goal, but one that’s no doubt attainable for this driven teen, who’s been pushing herself to defy expectations since she was a baby. Her accomplishments are all the more remarkable considering that she was born with a serious gastrointestinal condition.

Read Full Story | Leave a Comment

The show must go on: Teen overcomes motility disorder

teen recovers from motility disorder

In October 2016, we were spending a weekend in Minnesota for a family wedding. Little did we know we would be there longer than expected!

During the rehearsal dinner, my 16-year-old daughter Sophie said she wasn’t hungry — a surprise because it had been a long day of travel and the rest of us were starving. She managed to force down some food but seemed lethargic and not herself. She later confessed that she had been feeling sick all day.

Back at the hotel, I had just drifted off to sleep when my other daughter called me from their room. She said Sophie was sick and crying. I ran down the hall and when I saw her, I just knew something was wrong. My instincts said get to the ER right away.

Read Full Story | Leave a Comment