Stories about: transposition of the great arteries

Samuel’s heart: After four years and four surgeries, it’s the healthiest it’s ever been

Samuel, who had a biventricular repair on his heart, wears his heart hero costume.

When Samuel Guinn was born, his parents, Jennifer and Grant, expected at least one surprise. The couple from Jennings, Louisiana had chosen not to learn their third baby’s gender ahead of delivery. But soon after their beautiful boy’s birth, they got an unexpected surprise — he had a serious heart condition.

“Within an hour, the doctors noticed a heart murmur and transferred him to a larger hospital in Louisiana,” says Jennifer. “Once he was there, they diagnosed him with transposition of the great arteries (TGA) and a ventricular septal defect (VSD), but they couldn’t keep him stable, so they told us they wanted to send him to a bigger hospital in New Orleans.”

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A biventricular repair for Jayce’s one-of-a-kind heart

Jayce, born with heterotaxy syndrome, crawls through a tube at the playground.Amanda Mattioli was working in Afghanistan as a government contractor and had just completed a whirlwind round of travel to three separate continents when she learned she was pregnant.

The helicopter unit that took her back to the main base, so she could return home for her pregnancy, gave her a unit sticker to commemorate her baby’s first helicopter ride. Little did she know it would also mark the beginning of a much longer journey for her and her son, William “Jayce” James.

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