Stories about: tracheomalacia

Harper’s bright future after care for esophageal atresia

Harper smiles at her appointment for esophageal atresia
PHOTOS: MICHAEL GODERRE/BOSTON CHILDREN’S HOSPITAL

At age 4, Harper Robinson doesn’t really remember most of the clinicians who helped change her life — but that doesn’t stop her from greeting Dr. Russell Jennings with a big smile at a recent appointment. “Whenever Harper had surgery, he would cut her dressings into the shape of a heart,” says her mom, Jessica, of Jennings, surgical director of the Esophageal and Airway Treatment (EAT) Center at Boston Children’s Hospital.

Read Full Story

Noisy breathing? It could be tracheomalacia

doctor examines boy with tracheomalacia
IMAGE: ADOBE STOCK

DJ is at his pediatrician’s office with his third bout of pneumonia this year. Katie wants to play soccer, but gasps for air when she exerts herself. Sarah’s parents have learned CPR because she has stopped breathing so many times. Although these kids appear to have very different problems, they all have one underlying cause: tracheomalacia.

Read Full Story

Andrew’s story: Gold medalist kicks aerodigestive problems

With his asthma under control, Andrew holds the American flag after winning a gold medal
PHOTOS: COURTESY OF THE WARREN FAMILY

Last November, Andrew Warren stood on the podium in front of the American flag, grinning proudly as the medals around his neck glinted in the light. He had traveled to Orlando, Florida from his home in upstate New York to compete in the Karate and Kickboxing World Championships — and he delivered, taking home both a gold and a silver medal. It was an incredible accomplishment for a teenager once so ill that he made nearly three dozen visits to the emergency department before he was 6 years old.

Read Full Story

A force to be reckoned with: Treatment for tracheomalacia helps Kate breathe easier

Kate is breathing easier after treatment for tracheomalacia

She’s only 8 years old, but Kate Elliott recently got a bit of an extreme makeover, donating 10 inches of her long sandy brown hair to the charity Locks of Love. Not only was she eager to see her tresses go to benefit a child in need, but she was also ready for a big change herself. “I want a whole new me,” she explained to her parents, Kristy and Todd.

Read Full Story