Stories about: TESLA

‘She’s a fighter’: Nora’s amazing recovery from surgery for midaortic syndrome

Nora underwent MAGIC for midaortic syndrome

It’s an unseasonably warm February day, and 4-year-old Nora is enjoying the fresh air, immersed in an intense game of “Mother May I?” She’s in the lead, but her friend Jonette Jean-Louis is catching up.

“Nora, you may take four ‘Single Ladies’ steps,” advises Linda Pengeroth. After asking permission, the little girl gleefully skips forward, waving her raised hand in homage to the iconic Beyoncé video. “I won!” she exclaims as she crosses the finish line, a wide smile spreading across her face.

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Second opinion for midaortic syndrome gives Cameron a second chance

midaortic syndrome

Cameron Grubb likes to shoot Nerf guns, and even his own doctors aren’t immune from his aim — in fact, they often fire back. It’s a playful act that everyone welcomes, however, particularly since this 6-year-old has defied the odds multiple times in his young life.

Just three years ago, Cameron was struggling to survive after being diagnosed with extremely high blood pressure — so elevated, in fact, that his clinicians in Kansas thought the monitor must be broken. When they eventually confirmed the reading, it was 170/140, a dangerous level that sent him to the local intensive care unit for nine days.

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Our patients’ stories: New surgical technique helps Cristian avoid transplant


Typically, when people mention someone’s “big heart” it’s complimentary. But when doctors at Miami Children’s Hospital talked about the “big heart” of then two-month-old Cristian Colon, the phrase was nothing to smile about—it was the sign of a life-threatening illness.

During a routine check-up, Cristian’s doctors noticed the young boy had a heart murmur. The discovery prompted a trip to the cardiologist where it was revealed that his heart was enlarged, likely the result of midaortic syndrome. (Midaortic syndrome occurs when the aorta, the main artery that delivers oxygen-rich blood throughout the body, is narrowed or damaged.) Cristian’s aorta was so constricted it was straining his heart and severely raising his blood pressure by restricting blood flow to his kidneys (a condition known as renovascular hypertension.)

If left untreated for too long, Cristian’s kidneys would fail completely and he’d eventually need a kidney transplant.

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