Stories about: Spinal Program

Nicholas stands tall with Prader-Willi syndrome

Nicholas, who had spinal fusion surgery, shakes hands with Dr. Glotzbecker while his parents watch.
Nicholas presents an award to his surgeon, Dr. Michael Glotzbecker. Nicholas wears headphones in public to protect himself from sensory overload. (Michael Goderre/Boston Children’s)

When he rose from his chair to shake his surgeon’s hand, 17-year-old Nicholas Peters stood 4 inches taller than he had just a few months before. “Thank you for making me feel better,” Nicholas said to Dr. Michael Glotzbecker, the surgeon from the Boston Children’s Hospital Spinal Program who had operated on his spine. With a little prompting from his parents, Nicholas added, “I can bend over to play with my jeep.”

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Jordan’s Story: The scoliosis rollercoaster

Jordan Martelli scoliosis patient story brace

I like to call life a rollercoaster; sometimes you go up, and sometimes you go down. When you’re up, you are going through parts in your life when you are happy, and when you’re down, you’re going through parts in your life that make you sad, and nothing can make you feel happy. At one point in my life, I was always riding down.

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The five emotions of raising a child with infantile scoliosis

Avery, who has infantile scoliosis, with his brace

One night, while doing our son’s usual bath routine, I saw what looked like a hump on his back. Avery was 6 months old at the time. At first, I thought that it was just something I was imagining, but the hump never went away. In fact, it seemed to get worse. When Avery was 13 months old, he was officially diagnosed with infantile scoliosis, a rare form of scoliosis that occurs in children under 2 years of age.

The first hospital we were referred to would not even consider treating Avery until he was at least 18 months, and that was not a guarantee, so after doing some research, we came to Boston Children’s Hospital for a second opinion. We were referred to Dr. Michael Glotzbecker, one of the surgeons in the Spinal Program at Boston Children’s Orthopedic Center that specializes in early onset scoliosis.

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A bond between sisters made stronger by scoliosis

April and Mary Miller sit outside Boston Children's Hospital where they were treated for scoliosis.

Growing up, sisters will often share many things — and not always willingly. But it’s not often they will end up sharing the same condition, one that keeps them stuck in a rigid and uncomfortable back brace for most of the day. But then again, April and Mary Miller are not your average sisters.

The Miller sisters were both diagnosed with idiopathic scoliosis at the end of their fifth grade years. April, the oldest sister, was diagnosed in 2011, while younger sister Mary’s diagnosis came in 2013.

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