Stories about: Scott Snapper

Faces of IBD: Celebrating our patients and their caregivers

Nurse practitioner Caitlin Dolan with the Inflammatory Bowel Disease Center at Boston Children's Hospital.
IBD nurse practitioner Caitlin Dolan educating her patient Jenna, 11

Some say it takes a village to raise a child. When it comes to inflammatory bowel disease (IBD), our patients and their families depend on a “village” of caregivers — gastroenterologists, nurses, dietitians, social workers and more — to carry them through their journey.

Learn about the patients who inspire us and the dedicated Inflammatory Bowel Disease Center team that diagnose, educate and treat nearly 1,500 patients with Crohn’s disease and ulcerative colitis each year.

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From Bahrain to Boston for very early onset IBD care

20150723_GassenIBDVEO-16[1]During a recent visit to Boston Children’s Hospital, three-year-old Gassen Boabed quietly entered the waiting room of the hospital’s Inflammatory Bowel Disease Center.

With Mom and big brother in tow, the tiny toddler, boasting a pretty pink headband and nail polish to match, sat at a child-sized table, picked up crayons and started coloring. She was at ease, and her surroundings were familiar.

For the past year and a half, Gassen, a native of Bahrain, a small island country east of Saudi Arabia, has been receiving treatment at Boston Children’s for a rare and debilitating condition called very early onset (VEO) inflammatory bowel disease (IBD). 

The condition, which affects infants and children under 5, causes severe abdominal pain and bloody diarrhea, and it slows growth. The cause(s) of VEO-IBD remain unknown but likely include a combination of genetic and environmental factors.

“Boston Children’s has been taking very good care of Gassen and us as well,” says Gassen’s mother Manal, with the assistance of an interpreter from the hospital’s Interpreter Services Department. “The way they have been dealing with her case has been excellent.”

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