Growing up, sisters will often share many things — and not always willingly. But it’s not often they will end up sharing the same condition, one that keeps them stuck in a rigid and uncomfortable back brace for most of the day. But then again, April and Mary Miller are not your average sisters.
The Miller sisters were both diagnosed with idiopathic scoliosis at the end of their fifth grade years. April, the oldest sister, was diagnosed in 2011, while younger sister Mary’s diagnosis came in 2013. …
“In my experience, patients do better when they are well prepared for surgery,” says Dr. Michael Glotzbecker, a pediatric spine specialist and surgeon at Boston Children’s Hospital, who performs dozens of spinal fusion surgeries each year to treat children with scoliosis.
That’s why Glotzbecker teamed up with Brianna O’Connell, a child life specialist and program lead of simulation programs for patients and caregivers at the Boston Children’s SIMPeds Simulator Program, to create an immersive day for patients and their families to experience spinal fusion well ahead of surgery day. …
Books are great tools for teaching empathy to children. They can help kids understand what it’s like to walk in someone else’s shoes — someone with a physical or mental disability, chronic illness or learning difference. They can also help kids with medical issues see how other kids cope — which can be validating or even help spark new ideas. And books help younger generations recognize that no matter what obstacle they may face, they’re still just kids, and they’re not alone.
Today, many children’s book authors are weaving characters with medical conditions into their stories with appropriate sensitivity to both inform and create a sense of understanding among readers. Here are four must-reads for 8-12 year olds: …
Thanksgiving Day is a time rich in family, gratitude and appreciation. In honor of the holiday, we are celebrating the patient families who have traveled through our doors and the selfless acts of kindness and volunteerism that follow.
Donating platelets and cycling for a cause
Ten years ago, Adam Nussenbaum’s son, Max, was treated at Boston Children’s and overcame a life threatening illness. Today, Adam gives his time — and platelets — to help those in need, and he is doing so in celebration of Max; his daughter Kate, who donated her bone marrow to help her brother; and the clinicians, who made his son’s recovery possible.
For the past eight years, Adam has participated in the Pan Mass Challenge and raised over $55,000 to benefit the Pediatric Bone Marrow Transplant Center at Boston Children’s. He also donates platelets on a monthly basis.
“It has been immensely gratifying to know that I have and will continue to play a small role in helping patients like Max on their road to recovery,” he says.