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Miranda Day was born with a rare type of congenital scoliosis and a tethered spinal cord, a condition where the spine is split into two and entwined towards the tailbone. After her first surgery in her family’s home state of California, it became clear to doctors that it wouldn’t be her last. “Scoliosis isn’t life-threatening, but it can be a detriment to your well-being,” says Day. “My parents’ goal was to give me the best quality of life and not have any setbacks physically or otherwise.”
Jordan’s Story: The scoliosis rollercoaster
I like to call life a rollercoaster; sometimes you go up, and sometimes you go down. When you’re up, you are going through parts in your life when you are happy, and when you’re down, you’re going through parts in your life that make you sad, and nothing can make you feel happy. At one point in my life, I was always riding down.
Helping your child manage scoliosis and brace-wearing
For children and adolescents who are prescribed a brace to help correct their idiopathic scoliosis, it can be a long road to straightening their curve. Bracing takes commitment and patience, but the end goal is to correct a patient’s curved spine and avoid surgical treatment.
Dr. Michael Glotzbecker, an orthopedic surgeon in the Spinal Program at Boston Children’s Hospital Orthopedics and Sports Medicine Center, and Deborah Cranford, a nurse at Boston Children’s who works closely with scoliosis patients, provide insights and tips on how parents can help their children better manage their scoliosis treatment. …
The five emotions of raising a child with infantile scoliosis
One night, while doing our son’s usual bath routine, I saw what looked like a hump on his back. Avery was 6 months old at the time. At first, I thought that it was just something I was imagining, but the hump never went away. In fact, it seemed to get worse. When Avery was 13 months old, he was officially diagnosed with infantile scoliosis, a rare form of scoliosis that occurs in children under 2 years of age.
The first hospital we were referred to would not even consider treating Avery until he was at least 18 months, and that was not a guarantee, so after doing some research, we came to Boston Children’s Hospital for a second opinion. We were referred to Dr. Michael Glotzbecker, one of the surgeons in the Spinal Program at Boston Children’s Orthopedic Center that specializes in early onset scoliosis. …