Stories about: Pulmonary atresia

For this heart patient, what goes around, comes around

Robin

When Robin Scott was a little girl, traveling back and forth to the hospital to be treated for her single ventricle heart defect, her mother, Susan, had a simple wish: “What I really wanted was to see an older child who had a heart defect … I wanted to see teenagers, adults … I wanted to see people who had a normal life.”

Funny how things work out. Today, Susan’s daughter is 30 years old and working at Boston Children’s Hospital—the same place she’s been receiving treatment since she was born. Robin, who recently transitioned to an analyst role in the Physicians’ Organization, previously worked in the Advanced Fetal Care Center (AFCC).  There, she was frequently asked to meet with fetal cardiac patients and their expectant parents, answering questions about her own experience and serving as a strong, healthy example of a congenital heart patient living a normal life.

Robin had volunteered at Boston Children’s as a teenager and had “always wanted to work at the hospital.” When a job opportunity came along in 2010, she took it. Strangely, Robin says that the job recruiters who helped place her at Boston Children’s did not know that she had been treated there, and her personal history had nothing to do with their hiring decision.

Today Robin is often in contact with doctors and nurses who care for heart patients, and they regularly ask for Robin’s help in answering questions from parents.

Read Full Story | 4 Comments | Leave a Comment