Stories about: personally controlled health record

Empowering patients with access, control of their health information

By Daniel Nigrin, MD, MPH, senior VP for Information Services and Chief Information Officer

Earlier this spring Children’s Hospital Boston launched its patient portal,, as a secure Web site that lets patients and families manage their appointments, send messages to their Children’s clinicians, view and pay their bills online, update their demographics and view their personally controlled health record (PCHR). The PCHR piece of the portal was developed by researchers here at the hospital and lets patients own a digital copy of their medical record – really putting them in the driver’s seat with access to their information, and even allowing them to share that information with physicians, family members or others as they wish.

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