I’ve had asthma and chronic lung disease since I was very young. I had to use everything — from my head to my toes — to help me breathe. I remember being able to hear myself wheezing, to feel my lungs rattling. I had marks all over my face from my oxygen mask. I thought I would never be clear of mucus and never be able to walk without being out of breath.
All I ever wanted was to breathe. …
Many children wait months — and sometimes years — for a transplant, but thanks to the generosity of living donors, some kids don’t have to wait. Read about the lives and futures of four children saved by living donation.
Helping Sloan live up to her name
Without Lt. Steve Tenney, 7-month-old Sloan wouldn’t be nursing, beginning to roll over on her own or meeting other milestones. “I did what anyone would have done,” says Tenney, who donated a piece of his liver when Sloan was only 5 months old.
“Sloan means ‘warrior,’” her mom, Sarah says. “We didn’t think she’d need to be a warrior at such a young age — but she showed us she is.” Read more about Sloan’s liver transplant.
I was born on January 29, 1992 with a birth defect called gastroschisis, which meant that my intestines extended outside my body through a small hole in my abdominal wall. I received a liver, small and large bowel transplant in December of 1992, just before my first birthday. Though I was transplanted in Pennsylvania, I have been cared for by the brilliant team at Boston Children’s Hospital ever since.
When I was first recovering in Pennsylvania, my parents were told that I would never be able to swim in the ocean because I would have to have a central line in for the rest of my life. Well, to that person I would like to say:
I have swam in two oceans.
When Lucas St. Onge blew out the five candles on his birthday cake, he made just one wish. He didn’t ask for ninja turtles, a T-ball set or an Xbox — the only thing he wished was to be just like any other kid.
“It was a gift I couldn’t give,” says his mom, Heather.
On that same day, last May, he got his wish.
“He got a liver, stomach, pancreas, intestine and spleen — the five organs he needed to help him become healthy and happy,” Heather says.
Heather was 18 weeks pregnant when she and her husband, Anthony, learned they were about to face a myriad of medical challenges with their unborn child. To what extent remained unclear, until the day Lucas was born. …