Stories about: NICU

The Boston Marathon: Brave and beyond

Brave. It’s the word inscribed on the simple band Mary Tremper wears on her left wrist. The band is a reminder from her son Shane that she possesses the strength and courage to bravely face the future.

When Mary, a Boston Children’s Hospital Miles for Miracles runner, found the band in the hospital gift shop she knew it was from Shane. And as Mary has shared her son’s story with her teammates and listened to theirs, they have redefined brave, together. A few of their stories, including the Tremper’s, follow.

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Giving thanks: Stories of volunteerism, gratitude and giving back

Thanksgiving Day is a time rich in family, gratitude and appreciation. In honor of the holiday, we are celebrating the patient families who have traveled through our doors and the selfless acts of kindness and volunteerism that follow.

Donating platelets and cycling for a cause

Ten years ago, Adam Nussenbaum’s son, Max, was treated at Boston Children’s and overcame a life threatening illness. Today, Adam gives his time — and platelets — to help those in need, and he is doing so in celebration of Max; his daughter Kate, who donated her bone marrow to help her brother; and the clinicians, who made his son’s recovery possible.

Shari Abramowitz, Max, Kate and Adam Nussenbaum
Shari Abramowitz, Adam, Kate, and Max Nussenbaum

For the past eight years, Adam has participated in the Pan Mass Challenge and raised over $55,000 to benefit the Pediatric Bone Marrow Transplant Center at Boston Children’s. He also donates platelets on a monthly basis.

“It has been immensely gratifying to know that I have and will continue to play a small role in helping patients like Max on their road to recovery,” he says.


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Dalton’s legacy: Avery’s heart, Cheryl’s hope

heart-transplant-averyDalton Lawyer is forever 8. He’s a big brother. He’s a leader. And he’s a hero — an organ donor who’s saved four lives and provided hope to many, many more.

Avery Toole is 12. She’s an only child — with three older brothers.

Dalton and Avery’s lives intersected in 2009.

Dalton was riding his bike, while on a family vacation.

Avery, 5, was at Boston Children’s Hospital, her life hanging in the balance. She had been on the transplant list, waiting for a heart for 52 days.

Dalton was struck by a truck.

One week after the accident, Dr. Elizabeth Blume, medical director of the Boston Children’s Heart Transplant Program, phoned Avery’s parents Cheryl and Mike Toole. She had “the perfect heart” for Avery.

“We knew Dalton didn’t need his organs wherever he was going,” says Dalton’s father Jim Lawyer. Jim, an anesthesiologist, and his wife Jeri, an operating room nurse, donated their son’s organs.

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Two perfect reasons to pay it forward

GetMediaPreview-2In 2008, Katie and Paul Litterer were living in New York City and expecting identical twins. When Katie was 26 weeks pregnant, they bought a house near Boston to be closer to family. The following week, Katie went into early labor, resulting in an emergency C-section and the premature birth of their daughters. Their new house would remain empty for months.

Sophie arrived first at a tiny 1 pound, 15 ounces and let out a cry. Maddie followed her sister at an even tinier 1 pound, 10 ounces. “I didn’t hear anything,” Katie remembers. “They just ran out of the room with her.”

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