Stories about: neonatal intensive care unit

Olivia’s story: Recovering from necrotizing enterocolitis

Emily and Leo pose with Olivia, who had necrotizing enterocolitis, next to an open field.
Emily and Leo Martins with Olivia. [PHOTOS COURTESY OF THE MARTINS FAMILY]

Any new baby’s arrival comes with a long list of questions for parents. Will the baby sleep through the night, for instance, and what type of diaper is best? When babies are born premature, however, such questions typically give way to greater uncertainties. Will the baby’s internal organs develop and how long will they have to stay in the hospital?

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No more missing out: Bouncing back after an SCT

Emilya after treatment for her SCT
PHOTOS: COURTESY OF THE SHNAYDER FAMILY

Like many parents, Kat Shnayder and her husband, Serge, got creative as they prepared for the birth of their daughter, Emilya: Kat took to Pinterest to design the nursery, while Serge learned woodworking and created handmade toys. But their productivity served another purpose, too: “We needed to stay occupied,” explains Serge.

Months earlier — on a Friday before Martin Luther King Jr. Day — the couple was at a routine ultrasound appointment to learn their baby’s sex when the clinician called them aside. At the same time they learned that they were having a girl, they were told that she had a tumor at the base of her tailbone called a sacrococcygeal teratoma (SCT).

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After the NICU: How to become an outpatient visit guru

  • Twins side-by-side in the NICU
    Drew and Emma, 2008

The Neonatal Intensive Care Unit (NICU) at Boston Children’s Hospital is unlike any other place. In the NICU, a team of top-notch providers cares for your child around-the-clock. Once home, you must quickly adapt to caring for your fragile baby on your own, which includes navigating the world of outpatient visits.

Our twins, Drew and Emma, were born nine weeks early. After a long stay at Boston Children’s NICU, my husband Jon and I began juggling multiple outpatient visits with Emma. Here are some tips and tricks we learned along the way.

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Surgery to remove blood clot saves London’s kidneys

London, who had a large blood clot in her aorta, recovers after surgery.Todd and Lindsey Taylor had barely settled in at home in Syracuse, New York with their new baby, London, when their world turned upside down.

London, who had seemed perfectly healthy at birth, woke up nine days later vomiting and struggling to breathe. They rushed her to their local children’s hospital.

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