Stories about: necrotizing enterocolitis

Isaac’s story: A ‘new normal’ with short bowel syndrome

Isaac stays active with short bowel syndrome

It was the morning after their baby son Isaac had come home from the hospital, and Jennifer and Brian Campbell were performing the same sweet act of bonding as many new parents: giving him a bath in the sink. But as they maneuvered around the room, they suddenly realized something was very wrong. “I fell to the floor and started screaming and crying as formula shot out of his stomach,” remembers Jennifer. “I thought we’d broken him.”

The reality, of course, was that the Campbells were simply adjusting to their new “normal” — something any parent of a medically complex child can understand. Isaac wasn’t a newborn. He had finally been discharged from the hospital after nine months. And his parents hadn’t hurt him. They’d just accidentally pulled out his gastrostomy (G-tube), which provided his body with nutritional support.

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