Strangers often tell Christine and Bryan that their daughter Murphy has such big, beautiful eyes. What they don’t know is that one of her eyes is not real. “We just want to say, ‘You have no idea!’, but we just smile and say, ‘thank you!’”
When Murphy was five months old, Christine noticed that her daughter’s right pupil looked a bit iridescent. As a neurological nurse, she knew what to do to test a patient’s eyesight: she covered her daughter’s right eye to no effect. But when she covered the left eye, “Murphy lost her mind.”
Christine called her local pediatrician and was seen that afternoon. When a crowd of staff started to gather around Murphy during the exam, Christine knew something was wrong. “I’m a nurse. When there’s an odd diagnosis, everyone wants to observe the patient. I knew from experience that something wasn’t right.”
Murphy’s pediatrician scheduled an appointment for them two hours later at Boston Children’s Hospital’s Department of Ophthalmology. Ophthalmologist and surgeon Ankoor Shah, MD, PhD, examined Murphy and asked Christine and Bryan to sit down. They refused. …
by Shane, Meegan, Talon and Tristian Perkins
A little better than a year ago, Shane and I and our 1-year-old son were excited to find out that we were going to have another child. But when we got to our 20 week ultrasound on a Friday in September of 2008, my husband and I were told the words you never want to hear when you are pregnant: “There is a problem with the baby.” We were shown spots of fluid in the baby’s left lung and were told that it most likely was a CCAM (congenital cystic adenomatoid malformation), an abnormal growth of lung tissue that prevents the normal growth of the lungs.
Our world stood still and all we could think to ask was, “What did I do wrong and why did this happen?” We were assured that it was nothing that we did and that was there anything we could have done to prevent this. We had thousands of questions that needed immediate answers. We were told the soonest we could be seen was on Monday with a specialist in Manchester, New Hampshire. This was the longest weekend of our lives. With support from our family and friends, we knew all we could do until Monday was wait and pray. …