Stories about: Midaortic Syndrome and Renovascular Hypertension Center

The mighty Quinn: What it’s like to have midaortic syndrome

little boy with midaortic syndrome waits in his doctor's office
PHOTOS: SOPHIE FABBRI/BOSTON CHILDREN’S HOSPITAL

My name is Quinn and I’m 9 years old. When I was younger, my doctors noticed that my blood pressure was really high — and little kids shouldn’t have high blood pressure. My mom and dad took me to our hospital here in Utah and we found out that I have a really rare condition called midaortic syndrome. That means one of the tubes connected to my heart is too narrow.

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Making the decision: Choosing MAGIC for midaortic syndrome

PHOTO COURTESY OF THE RICE FAMILY/PHOTOS BELOW BY SOPHIE FABBRI AT BOSTON CHILDREN’S HOSPITAL

Several years ago, the Rice family wouldn’t have imagined that they would be traveling some 2,000 miles across the country for care. But after their youngest son, Quinn, was diagnosed with midaortic syndrome, they knew they had to make the trip. In this rare but serious condition, the part of the aorta (the heart’s largest blood vessel) that runs through the chest and abdomen is narrow, leading to reduced blood flow. Midaortic syndrome can cause dangerously high blood pressure and can be life threatening if left untreated.

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