Stories about: Learning disabilities

Giving thanks: Stories of volunteerism, gratitude and giving back

Thanksgiving Day is a time rich in family, gratitude and appreciation. In honor of the holiday, we are celebrating the patient families who have traveled through our doors and the selfless acts of kindness and volunteerism that follow.

Donating platelets and cycling for a cause

Ten years ago, Adam Nussenbaum’s son, Max, was treated at Boston Children’s and overcame a life threatening illness. Today, Adam gives his time — and platelets — to help those in need, and he is doing so in celebration of Max; his daughter Kate, who donated her bone marrow to help her brother; and the clinicians, who made his son’s recovery possible.

Shari Abramowitz, Max, Kate and Adam Nussenbaum
Shari Abramowitz, Adam, Kate, and Max Nussenbaum

For the past eight years, Adam has participated in the Pan Mass Challenge and raised over $55,000 to benefit the Pediatric Bone Marrow Transplant Center at Boston Children’s. He also donates platelets on a monthly basis.

“It has been immensely gratifying to know that I have and will continue to play a small role in helping patients like Max on their road to recovery,” he says.

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Samantha’s story: Partnering with BACPAC program to end bullying

During the fifth grade when Samantha was 10 years old, she was bullied by a male classmate. She remembers walking through the halls of her elementary school and hearing the bully call out these words:

“Why are you on this earth? You don’t deserve to be alive.”

The bullying followed her every day.

“I didn’t want to go to school because I knew he would be there. I was afraid,” says Samantha, now 12.

Weeks into the school year, the harassment and intimidation escalated and turned physical.

“It was usually mental [abuse], but at one point in fifth grade the bully came up to me, and he punched me on the back,” says Samantha quietly. This was the breaking point.

“I had enough,” says Samantha’s mother Karen. “The verbal and physical abuse needed to stop.”

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Exploring the brains of babies

Growing up, I thought of myself as a pretty smart kid, but school always seemed to be harder for me than some of my friends. I understood all my reading, but when it came time to communicate that to my teachers I came up short. For some reason, there was a disconnect between what I knew and what I could prove that I knew. By the fourth grade I was tested for learning disabilities and was diagnosed with dyslexia. My teachers were notified, I adapted some of my studying habits, and after a few short months going to school became something I enjoyed, rather than dreaded. (I can’t say I was thrilled to be the only high school senior still muttering the ‘i before e except after c…” rhyme while writing, but it helped and I eventually graduated with flying colors.)

Seeing as I now write for living, I’ve clearly outgrown my initial hate for the written word. But part of me can’t help but wonder what my writing skill-set would be like had my learning issues been discovered earlier, making my first few years of school less challenging.

Thanks to work being done at Children’s Hospital Boston, early detection of learning disabilities could be possible in the not-so-distant future, in some cases long before the child is even old enough to read. Co-lead by Ellen Grant, MD, director of the Fetal-Neonatal Neuroimaging and Developmental Science Center at Children’s Hospital Boston, and Nadine Gaab, PhD, assistant Professor of Pediatrics, the study is using neuroimaging to look for brain patters, which could indicate future learning disabilities.  Here’s a video explaining some of the techniques they use to study developing brains.

If learning disabilities can be identified early enough, doctors hope children with these conditions can be taught learning strategies early in life, often treating their learning disability before it’s even apparent.

The following is an excerpt from a Boston Globe article that highlights Gaab and Grant’s work in this field.

Nothing was wrong with Ava; the 11-month-old from Boston was part of a study that uses brain imaging to see if early hallmarks of dyslexia can be seen years before children have trouble reading. Scientists believe that if they can identify nascent disorders such as dyslexia or autism earlier, and get a jump on therapy, they might eventually be able to prevent children from developing problems later.

Ellen Grant, MD

“We know many important pediatric disorders start to emerge early on, and some things, for example dyslexia, you might not pick up until they’re reading. But you know their brain has probably started to diverge from normal in some way early on,’’ said Dr. P. Ellen Grant of Children’s Hospital Boston, who is leading the study with Nadine Gaab, an assistant professor of pediatrics at Children’s. The research is being done at the hospital’s Waltham clinic.

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