Most 11-year-old boys don’t own multiple dress suits, nor have they testified at a State Capitol. But Carson Domey is far from typical. As his Twitter handle suggests (@POTUSIT), he’s in training to be President.
This year has been a particularly productive one for Carson, as he takes cues for his 2044 presidential campaign. Five years ago, though, Carson was thinking more about getting a diagnosis than practicing politics.
Starting around age 6, Carson’s cheeks and gums would mysteriously become puffy and red. “It would come and go, and was something that only a mom would pick up on,” remembers Carson’s mother, Michelle. She took him to a dentist and an otolaryngologist, but the symptoms were always gone by appointment time, so neither doctor was concerned.
Hover over the photos to read about Boston Children’s IBD patients and the care they receive.
Boston Children’s Inflammatory Bowel Disease Center treats over 1,500 children, adolescents and young adults managing IBD each year. Whether patients are traveling across the globe for very early onset IBD care, balancing diet and medication at home, school or abroad or living a life free of Crohn’s or colitis after surgery, the caregivers at the Boston Children’s Inflammatory Bowel Disease Center understand the challenges patients and families face and support them every step of the way. In honor of National Crohn’s & Colitis Awareness Week (Dec. 1-7), we are celebrating our IBD patients and the team of physicians, nurses, dietitians and social workers who supported them through their journey.
Learn more about the Boston Children’s Inflammatory Bowel Disease Center.
I’m a 20-year-old rising junior at Harvard University and I have inflammatory bowel disease (IBD).
Growing up in Orlando, Florida, I participated in typical childhood activities and was what you would consider to be a “normal” kid.
But I was dealing with chronic, excruciating abdominal pain, diarrhea and bloody stools. At age 10, doctors diagnosed me with Crohn’s disease.
I went from one hospital visit to another and was prescribed various pills, injections and infusions, all of which failed at some point.
During high school, I was embarrassed to discuss my disease. Very few of my teachers and friends knew I had Crohn’s. I was afraid I wouldn’t be able to manage school assignments, participate in athletics and still have a social life.
Mark Donohue craves outdoor activity. While most were braving Old Man Winter’s 2015 wrath, this 19-year-old Ticonderoga, New York native embraced Mother Nature and hiked to the summit of his home state’s Black Mountain, tackled the slopes in Colorado and pond-skated locally with friends.
Mark says his love of the great outdoors and his quest to climb new personal heights has never been overshadowed by ulcerative colitis.
“I won’t let the disease define me,” says Donohue, a college freshman at Binghamton University in New York. “I take it in stride, stay positive and don’t let ulcerative colitis dictate the kind of person I want to be.”