When it comes to being active, there is no stopping Caroline Spaulding. Whether speaking on behalf of inflammatory bowel disease (IBD) legislation on Capitol Hill, performing in a ballet recital or lacing up her cleats for a soccer game, Caroline, 13, is a force to be reckoned with.
Some say it takes a village to raise a child. When it comes to inflammatory bowel disease (IBD), our patients and their families depend on a “village” of caregivers — gastroenterologists, nurses, dietitians, social workers and more — to carry them through their journey.
Learn about the patients who inspire us and the dedicated Inflammatory Bowel Disease Center team that diagnose, educate and treat nearly 1,500 patients with Crohn’s disease and ulcerative colitis each year. …
Like most high school seniors, Camden Vassallo of Norwell has a very busy schedule. The 17-year-old Thayer Academy student manages a heavy academic schedule, works at the local YMCA, is a two-sport, three-season athlete and is looking ahead to college.
But like nearly 800,000 children and adults in the U.S., Camden is also managing Crohn’s disease — a chronic inflammation of the gastrointestinal tract. The condition causes intense stomach pain, diarrhea, fatigue, bloody stool and weight loss in severe cases.
Although the disease has uncomfortable and sometimes embarrassing symptoms, Camden says Crohn’s hasn’t slowed him down or shaken his optimism.
“At first I struggled with having a disease that deals with a gross part of the body,” he says. “But Crohn’s doesn’t consume me and I don’t let it control my life.” …
Roughly 1.4 million Americans suffer from inflammatory bowel disease (IBD), which refers to conditions that cause inflammation of the intestinal tract. Children with IBD may suffer from abdominal pain, cramping, blood in the stools and diarrhea. Early signs may include fever, fatigue and weight loss.
IBD presents in two main forms: ulcerative colitis and Crohn’s disease. While both are lifelong conditions, they can often be treated effectively with regular medication and diet management, surgical care and psychological support.
The IBD Experience Journal, created by the Boston Children’s Hospital Inflammatory Bowel Disease Center and the Department of Psychiatry, includes stories and experiences from children, young adults and parents to represent the collective wisdom of families living with IBD. Here are some of their stories, in their own words. …