Stories about: IBD

Getting back into the swing of things: Jake’s journey with Crohn’s disease

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It was a cloudy, September day at the Country Club of Miami in South Florida. Jake Goodstat, a high school sophomore and varsity golfer, approached the ninth green. He walked up to his ball with putter in hand, took a deep breath and gently tapped the ball to make the putt.

He says this was the hole where he cinched second place in the 2016 South Florida Junior Golf Tournament.

“It was the greatest feeling in the world to know that I placed,” recalls Jake, a Florida teen who underwent surgery two months prior to treat his Crohn’s disease. “Before my surgery, I would register for a tournament, end up in the emergency room and be admitted to the hospital.”

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Overcoming IBD: ‘I am bigger than my Crohn’s disease.’

Camden Vassallo Crohns DiseaseLike most high school seniors, Camden Vassallo of Norwell has a very busy schedule. The 17-year-old Thayer Academy student manages a heavy academic schedule, works at the local YMCA, is a two-sport, three-season athlete and is looking ahead to college.

But like nearly 800,000 children and adults in the U.S., Camden is also managing Crohn’s disease — a chronic inflammation of the gastrointestinal tract. The condition causes intense stomach pain, diarrhea, fatigue, bloody stool and weight loss in severe cases.

Although the disease has uncomfortable and sometimes embarrassing symptoms, Camden says Crohn’s hasn’t slowed him down or shaken his optimism.

“At first I struggled with having a disease that deals with a gross part of the body,” he says. “But Crohn’s doesn’t consume me and I don’t let it control my life.”

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“I’m the face behind the phone.”

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(Katherine C. Cohen/Boston Children’s Hospital)

 

Nikiay Kelly

Gastroenterology Scheduler, Care Team Member

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I answer frequently-asked questions using the live Web-chat feature, and I answer questions and schedule appointments by phone. I enjoy helping patients, especially when I see the impact on patient care.

I recently received a call from a new patient who wanted to see a doctor immediately. He was experiencing some stomach upset and was questioning whether he had IBD (inflammatory bowel disease.)

I was able to contact a doctor and quickly coordinate a consultation for a time that worked best for the patient. I felt really good at the end of the call because I got him the appointment and the care he needed.

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care-team-logoCaring for patients is a true team effort. Care Team highlights the dedication of the people throughout Boston Children’s who do their part to comfort and support patient families each and every day.

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Faces of IBD: Every journey is unique

Hover over the photos to read about Boston Children’s IBD patients and the care they receive.

Boston Children’s Inflammatory Bowel Disease Center treats over 1,500 children, adolescents and young adults managing IBD each year. Whether patients are traveling across the globe for very early onset IBD care, balancing diet and medication at home, school or abroad or living a life free of Crohn’s or colitis after surgery, the caregivers at the Boston Children’s Inflammatory Bowel Disease Center understand the challenges patients and families face and support them every step of the way. In honor of National Crohn’s & Colitis Awareness Week (Dec. 1-7), we are celebrating our IBD patients and the team of physicians, nurses, dietitians and social workers who supported them through their journey.

Learn more about the Boston Children’s Inflammatory Bowel Disease Center.

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