In the early morning of Sept. 11, 2001, Jennifer Miller was preparing to make history. She lay in pre-op, ready for the Boston Children’s Hospital Fetal Cardiology team to perform the world’s first fetal cardiac intervention on her unborn son.
Two weeks earlier, at her 18-week screening ultrasound, Jennifer and her husband Henry were told their son would be born with hypoplastic left heart syndrome (HLHS), a life-threatening heart defect where the left ventricle is small and underdeveloped. If born with HLHS, their son would immediately undergo multiple open-heart surgeries to repair his heart and, later, may need a heart transplant. …
We are honored U.S. News & World Report has named Boston Children’s Hospital the #1 pediatric hospital in the nation. It’s an opportunity for us to step back and celebrate your amazing families and your special moments — your baby steps, birthdays and graduations. You are the reason we do what we do.
Nineteen-year-old Joshua has been a patient at Boston Children’s Hospital his entire life. Born with hypoplastic left heart syndrome, a congenital heart disease, Josh required five open-heart surgeries along his journey, and on Aug. 4, 2014, he received a heart transplant. Four months later, family members gathered for Thanksgiving dinner, each giving thanks. When it came time for Josh to speak, he said, “I am thankful for my new heart, and I am thankful to give it a very good home.”
Josh’s mom Barbara shares the family’s extraordinary journey.