Stories about: Hirschsprung’s disease

No stopping him: Liam doesn’t let complex conditions slow him down

liam stays active despite complex conditions

Liam Wise has spent a considerable portion of his 14 years on earth seeing various clinicians at Boston Children’s Hospital. So it wasn’t surprising when, asked by his mother, Sarah, what he wanted to do during a recent vacation, he eagerly replied, “Go to my hospital!” But for this good-natured teenager, Dr. Samuel Nurko and the rest of his care team at the Motility and Functional Gastrointestinal Disorders Center — and in 11 other departments — are like family he looks forward to visiting.

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Fighting for the next family: Mom’s experience inspires nutrition support guidelines

Michelle fought to ensure that her twins receive the nutrition support they need at school for short bowel syndrome.

As Michelle Marti watched her twin sons, Nicholas and Max, run around the playground, she worried. To a stranger — like the representative of their local school’s Planning and Placement Team (PPT), there to evaluate the boys’ eligibility for special needs services in kindergarten — they looked like any other kids having fun. But their playfulness masked a serious illness: short bowel syndrome, the result of a condition called Hirschsprung’s disease. “They look healthy on the outside because all of their medical differences are under their clothes,” admits Michelle.

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Advocating for Bridget: Coping with Hirschsprung’s disease

Hirschsprung's disease

On June 20, Bridget Landry celebrated a very special day with a hearty steak dinner. But it wasn’t her birthday. Instead, the 10-year-old and her family were marking the sixth anniversary of the day her ostomy bag was removed. As she enjoyed her meal, her parents, Carl and Laura, marveled at just how far their daughter had come. “For her first birthday, she couldn’t even take a bite of cake,” remembers Carl.

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