Stories about: heart transplant

Joshua’s journey to heart transplant

Nineteen-year-old Joshua has been a patient at Boston Children’s Hospital his entire life. Born with hypoplastic left heart syndrome, a congenital heart disease, Josh required five open-heart surgeries along his journey, and on Aug. 4, 2014, he received a heart transplant. Four months later, family members gathered for Thanksgiving dinner, each giving thanks. When it came time for Josh to speak, he said, “I am thankful for my new heart, and I am thankful to give it a very good home.”

Josh’s mom Barbara shares the family’s extraordinary journey.

Learn more about the Boston Children’s Heart Transplant Program.

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A new normal: Life after pediatric heart transplant

"Danny strong:" Life after a heart transplant
Left to right: Tommie Deitz (uncle), Danny Deitz, Terry Deitz (father), Kayla Deitz (sister), Pam Deitz (aunt) and Trish Deitz (mother)

In September 2015, Simsbury, Connecticut, high school junior Danny Deitz had a heart transplant. 

After a few months of rest and recovery, he’s now back at school, returned to the gym and is spending quality time with his friends. Danny shares what he’s learned throughout his experience with cardiomyopathy and heart failure.

All in all, life’s been really great. I went back to school four weeks ago. Getting back into the work was a bit tough at first — I had been doing one hour of tutoring a day, and now I’m in school six hours a day! But I’m getting used to it. I’m basically doing everything I used to, and it’s nice to be back in that routine.

It got kind of boring sitting at home all the time while my friends were at school, but I had friends over on the weekends. And it made me appreciate the little things more. Being at home with family — that’s really important.

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Anatomy of a transplant: 13 lives, 17 days

Pediatric Transplant Center team
Some members of the transplant team, who performed a record number of transplants in January

It was “lucky 13” for the Boston Children’s Hospital Pediatric Transplant Center this January. Thirteen lives were saved by organ transplantation. Seven kidneys, three hearts, two livers and one pair of lungs were transplanted during the record-breaking month.

So what does it take to perform 13 transplants in 17 days?

“It takes a team,” says Dr. Heung Bae Kim, director of the Boston Children’s Pediatric Transplant Center. “We are very fortunate to have the talent and the resources necessary, so that when we call and say, ‘We have this many kids coming in for transplants,’ the team is ready, no matter what.”

Sixteen-year-old TJ Gregory is one of the lucky 13. He received a heart transplant in mid-January. He had been on the waiting list since October. Born with a serious heart defect called transposition of the great arteries, in which two main arteries leaving the heart are reversed, TJ has struggled with heart issues his entire life. At 40 days old, he had already undergone two open-heart surgeries.

“I was watching a playoff game on TV when Dr. [Elizabeth] Blume (medical director, Boston Children’s Heart Transplant Program) called and asked what I was doing,” says TJ’s dad Todd Gregory, “I told her I was watching the game and she said, ‘Do you think you could get it on the radio?’ As soon as she said that, I knew. I knew TJ had a heart.”

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In their own words: Six families share the impact of organ donation

This is the season for gratitude and giving, a time to celebrate friends, family, the end of one year and the beginning of a new one. But for a select group, it also is a time to celebrate one of the greatest gifts — the gift of life through organ donation.

Organ donation - Mickey

Mickey was born with a unique combination of congenital heart defects and spent most of his early life at Boston Children’s. He was one day shy of 6 months old when he received his heart transplant, and his family is grateful for every day since. “Mickey has shown us what courage and resiliency look like, and his transplant has taught us the true meaning of giving. He has touched so many lives and because of him, we have met so many amazing children and families, whose hearts and hopes far surpass their diagnoses.”

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