Stories about: Gene Partnership Project (GPP)

Boston Children’s brings CLARITY to families living with complex diseases

Genome sequencing may help parents of children with rare disease

The future of medicine is closer than you think. Today, scientists are able to learn more than ever about how our genes are likely to affect our health—and the diseases or conditions we may face later in life—thanks to a process known as genome sequencing (in-depth studying of our DNA). And because of technological advances made in recent years, the process has become less expensive, meaning it could soon be an important aspect of everyday care. (A decade ago it cost $3 million to sequence a person’s genes. Today the process runs about $1,000.)

But, as with any emerging technology, genome sequencing is experiencing a few growing pains as it becomes more commonplace.

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This week on Thrive: June 7-11

Here’s what Thrive was talking about this week.

Child athletes who get back on the field right after suffering a concussion are placing themselves at great risk. One of our experts helped word a bill before Massachusetts lawmakers that would make concussion safety a bigger concern for public school sports teams.

The Wall Street Journal featured an article on Children’s Hospital Boston’s Gene Partnership Project (GPP), a new program in which all patients entering Children’s will eventually be able to take part in genetic research—as active partners.

Scott Leibowitz, MD, of Children’s Hospital Boston’s department of psychiatry, blogged about a soon-to-be launched gender and sexuality psychosocial pilot program he has coordinated at Children’s, which will be the first of its kind in the United States.

Casey Bolton, the mom of a Children’s patient, blogged the about her Children’s experience with her son, Parker, born with a complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS).

Just because your child suffers from asthma doesn’t mean he or she can’t enjoy running, swimming and other outdoor play made possible by the long, bright days of summer! Check out the Healthy Family Fun website, a project of Children’s Hospital Boston and Kohl’s Department Stores, for info on this subject and more!

Children’s pediatrician Claire McCarthy wrote a blog on how parenting can feel like a competitive sport.

Did you know kids can suffer a stroke? Though rare, it’s not just an adult medical condition. Hear from Michael Rivkin, MD, director of the Cerebrovascular Disorders and Stroke program at Children’s Hospital Boston, who talks about childhood stroke and its treatment.

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