Stories about: G-J tube

Whatever it takes: Fighting for Michael

Michael doesn't let short bowel syndrome keep him from enjoying sports

Michael stood at the top of the hill, staring down at the glittering white snow. The prospect of skiing to the bottom was scary — on previous trips, he’d refused to try, worried that he would fall. But this time was different. He was ready to take a chance. Attempting to balance without using poles, he pushed himself forward and glided through the powder as his family cheered him on. By the end of the day, the 8-year-old had sailed down the slopes five times, all by himself.

The accomplishment was even more meaningful for his parents, Bill and Lisa Smith, who have watched him fight to survive — and thrive — since he was an infant. “He had some issues with spitting up and turning blue and was diagnosed with acid reflux when he was about a month old,” says Bill. “But we had suspicions that something else was wrong.”

Read Full Story | Leave a Comment

Second opinion gives Tim a second chance for motility health

Baby Newborn and NurseTim’s first few weeks of life were hard, on both him and his parents.

Born with various medical concerns, including a lack of the sucking and swallowing reflex—the instinctual way babies know how to suck and swallow milk—he had a hard time getting all the nutrients he needed. To help him thrive he was fitted with a gastric feeding tube (G-tube) that delivered formula directly to his stomach. But even with his tube, Tim still had problems with severe reflux. It puzzled his local doctors and pained his parents who were at a loss as to how they could comfort their son.

“It’s heartbreaking to have a child in pain and not be able to do anything,” says Tim’s mother Stephanie. “You feel so powerless.”

Read Full Story | Leave a Comment