Autoinflammatory diseases are a group of rare illnesses that cause recurrent episodes of fever and inflammation resulting from inappropriate activation of the immune system. While some have unknown causes, autoinflammatory diseases are often caused by genetic mutations. Symptoms include acute episodes of fever and other symptoms such as joint pain, rash, sores in the mouth, enlarged glands or abdominal pain, depending on their underlying illness.
Olivia Burgess knows every nook and cranny of Boston Children’s Hospital. The 13-year-old and her parents have traveled from their home in Bermuda to Boston since Olivia was three years old for ongoing treatments for systemic onset juvenile rheumatoid (idiopathic) arthritis and pediatric lupus.
“The unpredictable and severe nature of Olivia’s condition and the frequent travel required for medical treatment can be stressful at times,” says her mother Traci. Olivia sees providers in multiple departments: cardiology, nephrology, pulmonology, dermatology, neurology, gastroenterology and orthopedic surgery.
Drs. Fatma Dedeoglu and Marybeth Son, both in the Boston Children’s Rheumatology Program, are Olivia’s primary providers and serve as home base for her frequent visits. “We have cared for Olivia since she was a toddler. She’s like one of our own children,” says Dedeoglu.
The hospital’s four-legged, furry volunteers and their owners also play important roles in Olivia’s care and help the teen stay positive.
Olivia is an enthusiastic participant in Boston Children’s Pawprints Program — the hospital’s dog visitation service.
“Her face lights up when she talks about dogs. This program can really make a difference for kids who love animals,” says Son. …
Happy New Year from Boston Children’s Hospital! We asked some of our leaders, surgeons and doctors to share their hopes for 2016. We hope that their words bring inspiration, peace and wellness to you for the new year.
In 2016, I hope — or more accurately, I know — we will work together as a team across our Boston Children’s Hospital to continue to provide the highest quality, state-of-the-art care to children in our community and across the globe, while striving toward the breakthroughs in science, innovation and care that will help us to build a brighter future for everyone.
~ Sandra L. Fenwick, CEO …