When Ian was diagnosed with epilepsy at age 3, his doctors said he’d outgrow it before he turned 5. But just the opposite happened: four months later, he abruptly started having much more frequent seizures, up to 40 a day.
With medications, the seizures stopped. But still, something wasn’t right. Ian seemed to be losing cognitive skills and language. He seemed to be in a fog.
“His outward seizures were controlled, but he wasn’t learning well,” says his mother, Michelle. “His development just stopped. He couldn’t learn anything new. We tried—I’m a teacher—and he was in a great special education program that gave him lots of support. But if he learned something one day, he couldn’t retain it.”
The family saw doctors at two different hospitals near their home in the upstate New York area. All of them said that learning disabilities tend to go with the territory in epilepsy. They suggested that Ian work with his therapist, his special ed teacher and his occupational and physical therapists to make the most of what he had.