Stories about: epilepsy awareness month

Epilepsy: Top tips and tricks from our staff

In honor of Epilepsy Awareness Month, some of the nurses and social workers who support the Boston Children’s Hospital Epilepsy Center share their top epilepsy tips.

Chris, a social worker in the Epilpsy Center

Chris’s tip: Get support!

Chris Ryan, LCSW, recommends that you consider therapy for your child or family — or both. Kids with epilepsy are at higher risk for behavioral and mental health conditions, like anxiety, depression and attention-deficit/hyperactivity disorder (ADHD). They may also struggle with the lifestyle restrictions epilepsy can cause. A therapist can help your child learn to cope with these conditions.

Chris says joining a support group can also help kids with epilepsy — and their families — learn how to adjust to living with epilepsy.

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One patient's story: How brain stimulation is keeping my epileptic seizures at bay

For nearly 10 years, Kate suffered from severe epileptic seizures and lived with life-altering side effects from her many medications. In this video and in her first-person story below, Kate shares her story about how an experimental treatment has changed her life.

Kate’s story

Thanksgiving of 1999 was going to be a great day. My mom was coming home from the hospital after having surgery, and our entire family would be together for a big dinner that afternoon. It was shaping up to be a great holiday—that is, until I had my first seizure. I had the seizure at about 7 a.m. but I don’t remember anything except waking up in the local emergency room with a terrible headache and not being able to move my left side.

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