In honor of Epilepsy Awareness Month, some of the nurses and social workers who support the Boston Children’s Hospital Epilepsy Center share their top epilepsy tips.
Chris’s tip: Get support!
Chris Ryan, LCSW, recommends that you consider therapy for your child or family — or both. Kids with epilepsy are at higher risk for behavioral and mental health conditions, like anxiety, depression and attention-deficit/hyperactivity disorder (ADHD). They may also struggle with the lifestyle restrictions epilepsy can cause. A therapist can help your child learn to cope with these conditions.
Chris says joining a support group can also help kids with epilepsy — and their families — learn how to adjust to living with epilepsy. …
For nearly 10 years, Kate suffered from severe epileptic seizures and lived with life-altering side effects from her many medications. In this video and in her first-person story below, Kate shares her story about how an experimental treatment has changed her life.
Thanksgiving of 1999 was going to be a great day. My mom was coming home from the hospital after having surgery, and our entire family would be together for a big dinner that afternoon. It was shaping up to be a great holiday—that is, until I had my first seizure. I had the seizure at about 7 a.m. but I don’t remember anything except waking up in the local emergency room with a terrible headache and not being able to move my left side. …