Stories about: Dr. Ronald Lacro

Kayla’s back on her feet after Cardiac Fitness Program

Kayla, who has Marfan syndrome, hangs out at the beach.

Like many teenagers, 17-year-old Kayla Nelson attends high school and has a part-time job — hers is at a local bagel shop. But for Kayla, these “normal” teenage responsibilities were nearly impossible just a couple of years ago.

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Courtney’s story: Piecing together a genetic puzzle

Courtney, who has Loeys-Dietz syndrome poses after her college graduation. Courtney was born 22 years ago with a cleft palate, two clubbed feet and fists that were so tightly clenched they couldn’t be pulled apart. Since Courtney was an otherwise happy and healthy baby, neither her parents nor her doctor saw cause to be concerned about these seemingly unrelated conditions. What they didn’t realize was that these were the first clues to a genetic puzzle that would take ten years to unravel.

The next clue came at age 3.

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