Stories about: Dr. Benjamin Shore

Chloe’s story: ‘It’s okay to be different’

spinal dysgenesis

In a lot of ways, I’m like any 13-year-old: I like to FaceTime with my friends, play with my younger brother Ethan and our three dogs and post selfies on Instagram. I also play clarinet and love to sew, knit, quilt and make other crafts. But I’m different, too — and I want other kids to know that it’s okay to be different.

I was born with spinal dysgenesis, which means that one of my vertebrae was out of place and pinching my spinal cord. As a result of the surgery to fix it, I have a problem called post-operative paraplegia — I can’t move my legs when I want to. I use a wheelchair to get around most of the time. I think of the chair as being part of me, but it doesn’t define me.

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Teamwork and toughness: Living with cerebral palsy

María Sordo cerebral palsy Thriving lead image

Growing up in Querétaro, Mexico, María was an exceptionally bright and inquisitive child. At just 18 months old, she spoke at the level of a 6-year-old, and could even sing the tongue-twisting “Supercalifragilisticexpialidocious” song. Her parents marveled at her intelligence at such a young age, but there was something in her development that seemed off.

“At 1 year, she wasn’t crawling well and had difficulty standing,” her mother, María José, recalls. “She hadn’t learned to walk by 18 months, and she would crawl by pulling her two legs at the same time — like a little bunny.” Her parents knew that something was wrong, so they took her to see a pediatrician in their home country of Mexico.

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Teagan’s triumphant return: Dancing after Perthes disease

Teagan Keefe dance pose lead image

Teagan has lived and breathed dance — ballet, jazz, tap, and more — since she was 5 years old. “It’s what makes me happy,” the now 12-year-old says. But two years ago, she started to feel pain in her hip that persisted after dance class and worsened over time. As her spring dance season wrapped up with four shows in two days, Teagan ended the final show with her pain at its worst.

But since her injury didn’t seem to be anything more than a minor muscle pull, her mother Jeannine had Teagan lay low over the summer, hoping that rest would help the pain go away. When dance classes started again in September, her dance teacher noticed that Teagan lacked the flexibility to do the moves she normally could. She recommended that Jeannine take her daughter to Boston Children’s.

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Calvin’s gift: Second opinion provides answers and hope

movement disorder

It’s not often that parents breathe a sigh of relief when their child is diagnosed with a chronic, potentially debilitating condition. But that sense of peace is just what Paula and Scott Hurd felt when they were told that their son, Calvin, had a rare movement disorder. “We were so happy to finally understand what was happening,” says Paula.

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