Stories about: Down Syndrome Program

A diagnosis of Down syndrome motivates a family to go the extra mile

Mae, who has Down syndrome, sits on the bottom of a slide. As she leaves nursery school at the end of each day, Mae Tapley blows kisses to every person she passes on her way to the door. For her mother, Susie, watching teachers and staff step out into the hall to wave to her daughter is a welcome change. Three years ago, when Mae was born with Down syndrome, it seemed like no one knew what to say to her.

“When you have a typical child, people tell you how beautiful they are,” says Susie. “With Mae, no one told us she was beautiful or that she would have a full life until we came to Boston Children’s Hospital. They believed in her from the first day.”

Read Full Story

“I get them distracted.”

20151015_CareTeamKevin-3

(Katherine C. Cohen/Boston Children’s Hospital)

Nate Simons

Patient Liaison

open-quoteI’m a patient liaison. That’s my official title, but I prefer greeter. I greet the families that come in and walk them to their appointment rooms. I play with the kids. The kids are so adorable. They’re so cute.

Sometimes if they’re cranky, I play “Wheels on the Bus” on Youtube on my phone. I get them distracted with “Wheels on the Bus.”

That’s my favorite song ever. I used to listen to it myself when I was a kid.

I love my job. I have a great boss, and I love the pay. I work here part-time. I want to keep my job until whenever they tell me to leave, until they don’t need me anymore, until I retire. I’m hoping I can keep this job for a long time.close-quote

 

care-team-logoCaring for patients is a true team effort. Care Team highlights the dedication of the people throughout Boston Children’s who do their part to comfort and support patient families each and every day.

Read Full Story