Stories about: dialysis

‘Like night and day’: Kellen’s new kidney

little boy with new kidney
Kellen with his care team: Drs. Michael Ferguson, Asaf Vivante, Heung-Bae Kim and Khashayar Vakili

Like any parent, Brittany Young has scores of photos of her four children, whether they’re celebrating the holidays, visiting Disney World or just goofing around. But it’s a picture of her son Kellen at Boston Children’s Hospital that has the potential to bring tears to a viewer’s eyes. Surrounded by his care team, Kellen sits in his hospital bed, a wide smile on his face. There, amid the stuffed toys and colorful blankets, rests a seemingly innocuous item: a package of Pampers. Yet for Kellen and his family, those diapers mean so much more. They’re a sign that this little boy’s newly transplanted kidney is working just as it should.

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A bond rooted in kidney transplant: Catching up with Ayden and Aubrey

We celebrate National Kidney Month with a look back at a special friendship sparked by kidney transplant.

Close-up of Ayden as a toddler. Ayden was born with polycystic kidney disease and received a kidney transplant.

Ayden was born with polycystic kidney disease.

Close-up of Aubrey as a toddler. She was diagnosed with congenital nephrotic syndrome at 4 months old.

Aubrey was diagnosed with congenital nephrotic syndrome at 4 months old, and by age 18 months, she had both kidneys removed and was on dialysis.

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Nathan’s wild ride: An appendectomy, two transplants and the journey ahead

Nathan - intestine and kidney transplant recipient
Nathan, pre-transplant, during his Make-A-Wish trip to the San Diego Zoo

When the phone rang at the Natale family home in Loudonville, New York, during the early morning hours of Jan. 12, 2013, Nathan Natale knew exactly what it meant.

“My little sister had someone sleeping over. And I was like, ‘hello parents of friend, we gotta go.’”

The phone call was from Boston Children’s Hospital. A donor match had been found. The Natales quickly packed, hopped in the car and began the three-hour journey to the hospital for Nathan’s kidney and intestine transplant. But Nathan’s transplant journey didn’t begin here. It began five years earlier following a routine surgery.

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Gene for devastating kidney disease discovered

stockphotopro_4658724TJN_closeup_of_a_yoA genetic discovery by researchers at Children’s and Brigham and Women’s Hospital brings new hope for a mysterious, devastating kidney disease called focal segmental glomerulosclerosis (FSGS). It’s the second leading cause of kidney failure in children and forces patients onto dialysis and, all too often, kidney transplant – only to recur in the transplanted kidney, sometimes within hours.

The research team, led by Elizabeth Brown, MD, of Children’s Division of Nephrology, performed a genetic linkage analysis in two large families with FSGS and identified a variety of mutations in a gene known as INF2. They then sequenced INF2 in 91 additional families. In all, they found INF2 mutations in 11 of 93 families, as reported online in Nature Genetics on December 20.

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