Stories about: Department of Plastic and Oral Surgery

Overcoming cleft lip and palate: Aiden finds his smiley sense of humor

  • Aiden's cleft lip and palate journey

As they anxiously awaited the results of an 18-week ultrasound, Bonnie and Adam knew something wasn’t right. “We have a 4-year-old, Michael, and I never remembered having to wait after an ultrasound,” says Bonnie. “The longer we waited, the more I started panicking.” Sure enough, their suspicions were confirmed. The technician told the new parents that their baby, Aiden, would most likely have a cleft lip and cleft palate.

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Scars fade, hope doesn’t

After recovering from a dog bite, 2-year old girl plays with her brother

For the first time in over a year, Sarah and Chris Linskey are able to look at their daughter, Charlotte, and recognize her smile. For most parents, this is unremarkable, but for the Linskeys, “it means the world to us,” says Sarah.

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Families with Apert syndrome find similarities, not differences

Apert syndrome
Madilynn and her father Rocky

For some families in the waiting room on the day of the Apert syndrome clinic, it’s a reunion. For others, it’s a revelation. Coming to Boston Children’s Hospital from as far away as China, some have never met another child with Apert syndrome. Before long, parents and kids of all ages and ethnicities are taking group selfies as the younger children run around and play.

“These kids have the brightest smiles, they’re very resilient,” says Tambra Milot, mother of 3-year-old Madilynn.

Each year, the clinic sees about 50 children with Apert syndrome, a rare genetic disorder in which the skull, face, hands and feet develop abnormally. The clinic is held at least twice a month, bringing together the specialists each child needs to see. Today, families are also here for the weekend, to exchange information and learn about the latest research at Boston Children’s 2016 Apert Family Symposium.

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