Stories about: Crohn’s and Colitis Foundation of America (CCFA).

Our patients’ stories: Life after ulcerative colitis

When he was younger, having ulcerative colitis was tough on William
When William Tulip was 10 years old, he was excited to leave on a weeklong school trip, but his body had different plans. On day two of his adventure, he got violently ill and had to return home early. For the next few weeks, severe bloody diarrhea and abdominal cramping made his life almost unbearable.


His mother Karen suffered as well, namely because doctors couldn’t seem to pinpoint what was wrong with her son. During a weeklong stay at a local hospital, William was tested for salmonella and other bacteria, but nothing could account for his condition. William was then transferred to Children’s Hospital Boston, where doctors quickly scheduled a colonoscopy which indicated that he suffered from ulcerative colitis (UC). Initial treatment involved steroids and several medications; at one point, between meds and supplements, he was taking up to 50 pills a day. Some of these treatments provided temporary relief, but nothing seemed to help for very long.

By the time William was 14 he felt as if he had exhausted all of the available medication treatments, and decided he wanted to undergo surgery to end his ulcerative colitis once and for all. After much planning, doctors at Children’s scheduled a three-surgery procedure that involved first removing his colon and giving him an ostomy, then constructing an artificial large intestine, or pouch, out of parts of his small intestine, before finally removing the stoma and reconnecting his small intestine to the pouch. The decision to undergo such a massive procedure may have been too much for most kids, but William was confident that it was the right path for him.

“I’m a very straightforward person and I definitely get that from my mother,” he says. “It may not make me the easiest kid to be around all the time, but in this case it really helped. Knowing that I wanted this operation and I was ready for it took a lot of the guessing out of the hands of my doctors and parents.”

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