Stories about: congenital heart valve program

Edleigh’s story: A repaired mitral valve, a happy toddler

Eddie, who had heart valve surgery, poses with her stuffed dog Prudence
PHOTOS COURTESY OF THE PLAISTED FAMILY

Edleigh “Eddie” Plaisted is only 15 months old, but already cares for her own ward of patients, including Whalen, Ruffus and Prudence. Her stuffed animals are in good hands — Eddie has spent enough time around doctors and nurses to know how to keep her charges happy.

Eddie’s own medical care began before she was even born, when she was diagnosed prenatally with several congenital heart defects at her local hospital in Minnesota.

Read Full Story

Danny’s journey to a biventricular heart

Danny, born with heterotaxy syndrome, peeks out from a tree.The first hint that something wasn’t quite right with Danny Sanchez-Garcia’s heart came at his mom’s six-month prenatal visit.

“There was a little blip on the ultrasound, but then it was gone on the next one, so they didn’t think it was anything and I didn’t worry any more about it,” says Danny’s mom, Cynthia.

Cynthia was overjoyed when Danny was born at her local hospital seeming perfectly healthy. But as the hospital staff monitored Danny overnight, they noticed his oxygen level was lower than normal and decided to run more tests. His doctors believed the tests pointed to a congenital heart defect called tetralogy of Fallot with pulmonary atresia.

“They transported him overnight to Boston Children’s Hospital,” says Cynthia. “I felt like I was on a roller coaster, especially as a first-time mom.”

Read Full Story