Stories about: Cleft and Craniofacial Center

Overcoming cleft lip and palate: Aiden finds his smiley sense of humor

  • Aiden's cleft lip and palate journey

As they anxiously awaited the results of an 18-week ultrasound, Bonnie and Adam knew something wasn’t right. “We have a 4-year-old, Michael, and I never remembered having to wait after an ultrasound,” says Bonnie. “The longer we waited, the more I started panicking.” Sure enough, their suspicions were confirmed. The technician told the new parents that their baby, Aiden, would most likely have a cleft lip and cleft palate.

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Love and gratitude at the center of Evvie’s cleft lip and palate journey

Evvie was born with a cleft lip and palate

When Andrew and Karen Wu moved from their home in Manhattan to Manchester, New Hampshire, they were thrilled to be in closer proximity to Boston Children’s Hospital for their eldest daughter’s care. However, they had no idea just how fortuitous their decision would be until a few years later.

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Six tips for talking with your child about cleft lip or palate

back to school tips for cleft

Having a facial difference such as cleft lip or palate can be difficult for any child, but it’s especially challenging when they’re about to enter a new social situation like going to school. For some parents, this time is even more stressful than it is for children. In fact, many of the parents whom I meet in the Cleft and Craniofacial Center at Boston Children’s Hospital tell me that having discussions with their child about the cleft is the number-one concern. 

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Taking my own advice: When the professional becomes a parent

Treatment of Robin sequence.

As a disability expert, my whole career has been spent giving parents advice. I’ve given advice on parenting, doctors, child development, school and resources to support them. I was confident working with families and helping them navigate the often crazy and overwhelming world of special needs. But when I was 34 weeks pregnant with my own child, I found myself on the other side of the situation.

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