Stories about: cerebral palsy

Isaac’s story: A ‘new normal’ with short bowel syndrome

Isaac stays active with short bowel syndrome

It was the morning after their baby son Isaac had come home from the hospital, and Jennifer and Brian Campbell were performing the same sweet act of bonding as many new parents: giving him a bath in the sink. But as they maneuvered around the room, they suddenly realized something was very wrong. “I fell to the floor and started screaming and crying as formula shot out of his stomach,” remembers Jennifer. “I thought we’d broken him.”

The reality, of course, was that the Campbells were simply adjusting to their new “normal” — something any parent of a medically complex child can understand. Isaac wasn’t a newborn. He had finally been discharged from the hospital after nine months. And his parents hadn’t hurt him. They’d just accidentally pulled out his gastrostomy (G-tube), which provided his body with nutritional support.

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Calvin’s gift: Second opinion provides answers and hope

movement disorder

It’s not often that parents breathe a sigh of relief when their child is diagnosed with a chronic, potentially debilitating condition. But that sense of peace is just what Paula and Scott Hurd felt when they were told that their son, Calvin, had a rare movement disorder. “We were so happy to finally understand what was happening,” says Paula.

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Reading to teach and heal: Best books for 8-12 year olds

Best books for 8-12 year olds.

Books are great tools for teaching empathy to children. They can help kids understand what it’s like to walk in someone else’s shoes — someone with a physical or mental disability, chronic illness or learning difference. They can also help kids with medical issues see how other kids cope — which can be validating or even help spark new ideas. And books help younger generations recognize that no matter what obstacle they may face, they’re still just kids, and they’re not alone.

Today, many children’s book authors are weaving characters with medical conditions into their stories with appropriate sensitivity to both inform and create a sense of understanding among readers. Here are four must-reads for 8-12 year olds:

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Giving thanks: Stories of volunteerism, gratitude and giving back

Thanksgiving Day is a time rich in family, gratitude and appreciation. In honor of the holiday, we are celebrating the patient families who have traveled through our doors and the selfless acts of kindness and volunteerism that follow.

Donating platelets and cycling for a cause

Ten years ago, Adam Nussenbaum’s son, Max, was treated at Boston Children’s and overcame a life threatening illness. Today, Adam gives his time — and platelets — to help those in need, and he is doing so in celebration of Max; his daughter Kate, who donated her bone marrow to help her brother; and the clinicians, who made his son’s recovery possible.

Shari Abramowitz, Max, Kate and Adam Nussenbaum
Shari Abramowitz, Adam, Kate, and Max Nussenbaum

For the past eight years, Adam has participated in the Pan Mass Challenge and raised over $55,000 to benefit the Pediatric Bone Marrow Transplant Center at Boston Children’s. He also donates platelets on a monthly basis.

“It has been immensely gratifying to know that I have and will continue to play a small role in helping patients like Max on their road to recovery,” he says.


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