Stories about: cerebral palsy

Teamwork and toughness: Living with cerebral palsy

María Sordo cerebral palsy Thriving lead image

Growing up in Querétaro, Mexico, María was an exceptionally bright and inquisitive child. At just 18 months old, she spoke at the level of a 6-year-old, and could even sing the tongue-twisting “Supercalifragilisticexpialidocious” song. Her parents marveled at her intelligence at such a young age, but there was something in her development that seemed off.

“At 1 year, she wasn’t crawling well and had difficulty standing,” her mother, María José, recalls. “She hadn’t learned to walk by 18 months, and she would crawl by pulling her two legs at the same time — like a little bunny.” Her parents knew that something was wrong, so they took her to see a pediatrician in their home country of Mexico.

Read Full Story | Leave a Comment

Enjoying life to her full potential with cerebral palsy

Stella is thriving with cerebral palsy

For a month, Nikki Puzzo walked around with a hockey puck strapped to her torso. But this mother of two wasn’t just being silly or exhibiting her love of sports. Instead, she was demonstrating solidarity with her younger daughter, Stella. The little girl, who has spastic diplegia cerebral palsy (CP), had a device called a baclofen pump implanted into her abdomen. “I wanted her to feel more comfortable and know that she wasn’t alone,” explains Nikki.

Read Full Story | Leave a Comment

Isaac’s story: A ‘new normal’ with short bowel syndrome

Isaac stays active with short bowel syndrome

It was the morning after their baby son Isaac had come home from the hospital, and Jennifer and Brian Campbell were performing the same sweet act of bonding as many new parents: giving him a bath in the sink. But as they maneuvered around the room, they suddenly realized something was very wrong. “I fell to the floor and started screaming and crying as formula shot out of his stomach,” remembers Jennifer. “I thought we’d broken him.”

The reality, of course, was that the Campbells were simply adjusting to their new “normal” — something any parent of a medically complex child can understand. Isaac wasn’t a newborn. He had finally been discharged from the hospital after nine months. And his parents hadn’t hurt him. They’d just accidentally pulled out his gastrostomy (G-tube), which provided his body with nutritional support.

Read Full Story | Leave a Comment

Calvin’s gift: Second opinion provides answers and hope

movement disorder

It’s not often that parents breathe a sigh of relief when their child is diagnosed with a chronic, potentially debilitating condition. But that sense of peace is just what Paula and Scott Hurd felt when they were told that their son, Calvin, had a rare movement disorder. “We were so happy to finally understand what was happening,” says Paula.

Read Full Story | Leave a Comment