Stories about: birth disorder

Trading my patient ID bracelet for an employee ID badge

Honoring Craniofacial Acceptance Month and one young man’s quest to give back

By Torrence Chrisman

Torrence Chrisman, 24, is a history major at the University of Massachusetts Boston. At birth, Torrence was diagnosed with Apert syndrome, a rare genetic birth disorder involving abnormal growth of the skull and the face, fingers and toes. Read about his medical journey as a Boston Children’s patient and his quest to return to the hospital.

20140925_Torrence-26I came to Boston after being born in Chicago, where I was diagnosed with the amazing Apert syndrome. It was because of the doctors and surgeons at Boston Children’s Hospital that I ended up in Massachusetts. One surgeon, Dr. Joe Upton, specialized in operating on the hands of Apert patients. He swung a home run every time he entered the operating room and worked miracles with microsurgery. Dr. John Mulliken, who specialized in the craniofacial aspects of my surgeries, always had a can-do attitude and completed the surgeries with confidence.

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