Sunday, June 17, at 1 p.m. The Adult Cystic Fibrosis (CF) Program at Boston Children’s Hospital and Brigham and Women’s Hospital invites you for an afternoon of entertainment, education and discussion about life with CF and lung transplant. The event will feature a special screening of “The Power of Two,” a documentary offering an intimate look into the lives of twin sisters living with CF after double lung transplants. Their connection to the CF and transplant communities provides rare insight into the struggle—and triumph—of living with chronic illness.
The event is hosted by Ahmet Uluer, DO, director of the Adult CF Program, and his patient Beth Peters. The following blog offers a glimpse into Beth’s life and explains why events like this Sunday’s gathering are so important to the CF community.
This year, for the first time ever, more adults than children will be living with cystic fibrosis (CF), a chronic, inherited disease that affects a person’s lungs and digestive system. Just 50 years ago, most patients with CF didn’t live past elementary school. But thanks to modern medicine a majority of CF patients now live into adulthood, often into their 30s, 40s and beyond.
And while that’s great news, for patients with CF like Beth Peters, life is a little more complicated. …