Four-year-old Lotte is an aspiring artist and writer. When she was 10 months old, she was treated for vesicoureteral reflux (VUR) at Boston Children’s Hospital. Here Lotte pens her first blog post to share why she is thankful for her Mommy.
I am thankful for you because you drive me to school.
Teagan has lived and breathed dance — ballet, jazz, tap, and more — since she was 5 years old. “It’s what makes me happy,” the now 12-year-old says. But two years ago, she started to feel pain in her hip that persisted after dance class and worsened over time. As her spring dance season wrapped up with four shows in two days, Teagan ended the final show with her pain at its worst.
But since her injury didn’t seem to be anything more than a minor muscle pull, her mother Jeannine had Teagan lay low over the summer, hoping that rest would help the pain go away. When dance classes started again in September, her dance teacher noticed that Teagan lacked the flexibility to do the moves she normally could. She recommended that Jeannine take her daughter to Boston Children’s.
Navigating a child’s medical journey can be difficult on any parent. But for a mother or father not familiar with the U.S. healthcare system or whose first language isn’t English, the journey is much more complex.
Just ask one of the attendees at Fuente de Luz (“Fountain of Light”), the monthly informational group for Spanish-speaking families at Boston Children’s Hospital. On the first Tuesday of every month, around eight to ten Latino mothers — and occasionally fathers — get together to share their experiences and receive support from each other. There are hands to pass tissues and hold onto others; una familia formed from shared experiences. …
Most parents try to discourage their children from indulging in humor about bodily functions like burping. But for Daniel and Lori Hooley, a simple smirk in response to a belch was the sign they needed that their daughter, Cadagan, was going to be okay.
It was 2012 and 7-year-old Cadagan was asleep, tucked into bed for the night. Around 11 p.m., she suddenly awoke — but it wasn’t because of a nightmare or a late-night request for a glass of water. Instead, she seemed limp and couldn’t focus. Then she began throwing up. Born with an extremely rare genetic disorder called trisomy 12p, the little girl had already experienced her share of health challenges. But this was something different. …