Living his best life: Caring for Christian

little boy with short bowel syndrome wearing a fedora
PHOTOS: MICHAEL GODERRE/BOSTON CHILDREN’S HOSPITAL

Christian Jaspersen was wet, muddy — and having the time of his life. After an ATV ride around his family’s rural Oklahoma farm with their grandfather, he and his two older brothers plopped themselves into a nearby mud puddle, playing with toy trucks and getting wonderfully messy. “For a while, we didn’t know if Christian would be able to have a ‘normal’ childhood,” says his mother, Rachel. “Having these experiences now is just so special.”

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Sledding, ice skating and more: Top tips for winter sports safety

Winter-safety-sportsIf you aren’t traveling to a warmer climate this season, outdoor winter activities — sledding, skiing, snowboarding and more, are likely part of your family’s plans.

Dr. Michael O’Brien, director of the Boston Children’s Hospital Sports Concussion Clinic, says when it comes to winter sports, fun and exercise outweigh the risk. But you do need to be careful.

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Acute flaccid myelitis: What parents need to know

Photo of a toddler's feet
PHOTO: ADOBE STOCK

If you’re a parent, chances are you’ve heard the recent news reports about acute flaccid myelitis, or AFM. So far this year, 106 cases of AFM have been confirmed in 26 states, including two in Massachusetts. Similar outbreaks occurred in 2014 and 2016.

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Taking steps towards Rett syndrome awareness

Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year. On October 22, families from around Massachusetts came together to climb the steps of Gordon Hall at Harvard Medical School to symbolize their daily struggle and hope for the future. A few of those families share what Blue Sky Day means to them. 

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