Stories about: Research and Innovation

Study: Children with upper limb differences have better emotional health

Upper limb differences ans psychosocial health

Children born with upper limb differences face unique challenges in life. Conditions can range from failure of fingers to separate to complete or partial absence of a limb, which may make it difficult to perform certain tasks as easily as their peers. Often, parents of children with limb differences worry about how these physical challenges will affect the emotional development of their child. However, recent research from Boston Children’s Hospital has found that children with congenital hand differences have excellent emotional health.

A recent study led by Dr. Donald S. Bae, a pediatric orthopedic surgeon in the Hand and Upper Extremity Program at Boston Children’s Orthopedics and Sports Medicine Center, found that while children with upper limb differences exhibit decreased upper limb function, some form better peer relationships and have more positive emotional states compared to population norms.

Read Full Story | Leave a Comment

How to prevent ACL injuries in female athletes

ACL injury prevention female athletes

An ACL (anterior cruciate ligament) tear is a devastating injury that can end an athlete’s season and sometimes take up to a year to fully recover. Along with the pain and long rehab process, it also carries the consequences of a high rate of re-tear and increased risk for osteoarthritis. But what if you could decrease your risk of getting this injury, just by doing certain exercises for 20 minutes two times per week?

Dr. Dai Sugimoto, director of clinical research at The Micheli Center for Sports Injury Prevention at Boston Children’s Hospital, has focused his research on training regimens that help prevent ACL injuries. Through extensive study, Sugimoto has found specific exercises that have been shown to decrease the rate of ACL injuries for female athletes.

Read Full Story | Leave a Comment

How precision medicine turned Jesus’ unique tumor into an operable one

Jesus stands on a playground jungle gym in August 2017, after a cancerous tumor was removed surgicallyOn a hot, August day in a Boston park, Jesus Apolinaris Cruz cooled off with a water squirt gun fight with his mother and sister. As he nimbly ran and dodged their aim, he twisted around to sneak shots of water back in their direction.  Peals of laughter rang out from the group as Jesus landed a jet of water on his sister.

It’s hard to imagine that just weeks earlier, Jesus, 13, had undergone surgery near his hip to remove an unclassified tumor, so-described because it couldn’t be categorized as any specific kind of cancer.

Read Full Story | Leave a Comment

The space between heartache and happiness: Two sons with adrenoleukodystrophy

Paul and Liliana Rojas with their sons, Brandon and Brian, both of whom have adrenoleukodystrophy (ALD).
The Rojas family at a recent visit to Boston Children’s.

When Paul and Liliana Rojas talk about their life, they describe it in one of two ways — the way it was before their sons, 10-year-old Brandon and 7-year-old Brian, were diagnosed with ALD, and the way it is after. Their story is one of heartbreak — but also hope, in the form of a new clinical trial.

Learn more about the results of the clinical trial, recently published in the New England Journal of Medicine, that halted the progression of Brian’s ALD.

ALD is short for adrenoleukodystrophy, a debilitating brain disease that simply goes by its initials.

“Life before ALD was pure happiness without worries,” Paul says. “It was anything a parent could wish for — two boys with no medical issues, active, athletic, the healthiest boys ever.”

The two were inseparable. They played sports together in their hometown of Dover Plains, New York; idolized superheroes; danced like crazy; and dreamed of someday inventing video games. Brian was Brandon’s shadow.

Read Full Story | Leave a Comment