Stories about: Our Patients’ Stories

Celiac disease is not an allergy … and other misconceptions

Teen with Celiac disease eats cookie

When my younger sister, Abby, was 2 years old, she became extremely anemic, had a heart murmur and was frequently in pain. My parents took her to Boston Children’s Hospital, where they diagnosed her with celiac disease. Since it’s a genetic disease, we all got tested and I tested positive. That was 12 years ago, when I was five.

Today, I look like a normal teenage girl and if you saw me on the street, you would never know I had Celiac disease. I try to remember this when I see people or meet people for the first time — you never know who has an “invisible” illness like celiac disease.

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Banding together: Finding support for pediatric stroke

stroke recovery
Surrounded by his family, Patrick walks unassisted after recovering from a stroke.

Cristina Murphy is the daughter of a cardiologist, but even she wasn’t aware that stroke could occur in children — until her young son Patrick had one. Her vibrant little boy was just a toddler when he was rushed to the emergency room for what his parents and their pediatrician initially assumed was a severe stomach bug. But further testing confirmed the unimaginable: Patrick had experienced a rare bilateral cerebellar stroke.

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Because of a donor: Three transplant recipients celebrate their successes

heart transplant
The gift of organ transplant can open a whole new world of opportunities to recipients. Please join us in celebrating all the members of Boston Children’s transplant community — including three who are enjoying successes made possible #becauseofadonor.

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‘Not to be stopped’: Dorothy’s story

recovery from short bowel

Dorothy Hardy “doesn’t walk, she dances,” says her mom, Carrie. “She just waltzes around the house, singing songs she makes up. She’s not to be stopped.” In fact, when the little girl injured her leg at the playground, she taught herself to dance while wearing a cast. It’s a resilient, determined attitude that Dorothy — now two-and-a-half years old — has had since she was diagnosed with jejunal atresia as a newborn.

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