Stories about: Diseases & Conditions

Danny’s journey to a biventricular heart

Danny, born with heterotaxy syndrome, peeks out from a tree.The first hint that something wasn’t quite right with Danny Sanchez-Garcia’s heart came at his mom’s six-month prenatal visit.

“There was a little blip on the ultrasound, but then it was gone on the next one, so they didn’t think it was anything and I didn’t worry any more about it,” says Danny’s mom, Cynthia.

Cynthia was overjoyed when Danny was born at her local hospital seeming perfectly healthy. But as the hospital staff monitored Danny overnight, they noticed his oxygen level was lower than normal and decided to run more tests. His doctors believed the tests pointed to a congenital heart defect called tetralogy of Fallot with pulmonary atresia.

“They transported him overnight to Boston Children’s Hospital,” says Cynthia. “I felt like I was on a roller coaster, especially as a first-time mom.”

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Reena’s story: A bright future with short bowel syndrome

Reena doesn't let short bowel syndrome define her.

She’s just 16, but Reena Zuckerman knows exactly what she wants to be doing in another 10 years. “My dream is to play on the press team in the annual Women’s Congressional Softball Game,” says the aspiring political journalist. Since 2009, the event has pitted members of Congress against the press corps, raising nearly a million dollars for charity. “When I’m not doing schoolwork or watching TV, I’m listening to political podcasts and NPR,” Reena confesses.

It’s an impressive goal, but one that’s no doubt attainable for this driven teen, who’s been pushing herself to defy expectations since she was a baby. Her accomplishments are all the more remarkable considering that she was born with a serious gastrointestinal condition.

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Police save lives every day, just not this way — a liver for Sloan

Sloan after her liver transplant pictured next to her living donor, police lieutenant Steve Tenney
Sloane and Lt. Tenney

A police officer’s job is all about action and reaction.

“We see something, react to it and, typically, it’s over quickly,” says Lt. Steve Tenney of the Keene, New Hampshire, Police Department.

But on the morning of Sept. 8, while Steve lay in a hospital bed at Lahey Hospital & Medical Center in Burlington, Massachusetts, action/reaction wasn’t part of the equation. This time, there was time to think. Even so, the decision to donate a piece of his liver to save Sloan — a baby he’d never even met — was made without hesitation.

“I did what anyone would have done,” he says.

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Dealing with a diagnosis of epilepsy: Common questions from parents

Illustration of brain with epilepsy

A diagnosis of epilepsy can seem overwhelming: You likely have a lot of questions about how seizures — and their treatment — will affect your child’s life and what that might mean for your family. That’s why education is crucial for helping ensure that you understand as much as possible about the condition. Events such as the Fifth Annual Epilepsy Awareness Day at Disneyland are wonderful opportunities to learn from experts and from other families. Here, Dr. Arnold Sansevere of the Epilepsy Center at Boston Children’s Hospital answers five common questions from parents and kids.

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