Stories about: Diseases & Conditions

Investing in Esmé: More than aerodigestive care

Esme sits with her parents in the Aerodigestive Center
PHOTOS: SOPHIE FABBRI/BOSTON CHILDREN’S HOSPITAL

Esmé Savoie is pretty sure she’s going to marry Walter someday. There are some barriers: Esmé lives in upstate New York; Walter now resides in Los Angeles. Esmé is 7 years old and Walter is several years older. And while Esmé is a human little girl, Walter is a Muppet. Differences aside, however, it’s no surprise that they’re soul mates. Both are silly, determined — and finding their own unique place in the world.

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Helping heart patients overcome developmental issues

Focus on Boston Children's Cardiac Neurodevelopmental Program
PHOTO ILLUSTRATION: PATRICK BIBBINS/BOSTON CHILDREN’S HOSPITAL

If you have a child with congenital heart disease (CHD), you’re likely well-versed in the medical issues your child may face. But many parents don’t realize their children born with CHD may also be at risk for developmental problems.

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Working together for pain relief

Nadiya poses on a boat after receiving pain relief
PHOTOS COURTESY OF NADIYA ROY

When asked what she loves about lacrosse, 19-year-old Nadiya Roy pauses, searching for an answer. It’s not that she doesn’t know why she enjoys the sport — she can’t choose just one aspect of it. “I like the fast pace,” she says finally. “I love that it involves such teamwork. Even if you’re not the best individual player, if you work together, you can succeed.”

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Having Faith: A novel approach to heart surgery

Faith, who had heart surgery for pulmonary atresia using her own umbilical cord as a shunt, poses in a chair. When Rachel and Rudy Fasano of New Haven, Connecticut learned they were having their first baby after three years of trying, they were overjoyed, as were their families. At Rachel’s 15-week ultrasound to learn their baby’s sex, both grandmothers were also in tow, eager to hear the news. But the visit delivered some unexpected results.

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