In honor of Epilepsy Awareness Month, some of the nurses and social workers who support the Boston Children’s Hospital Epilepsy Center share their top epilepsy tips.
Chris’s tip: Get support!
Chris Ryan, LCSW, recommends that you consider therapy for your child or family — or both. Kids with epilepsy are at higher risk for behavioral and mental health conditions, like anxiety, depression and attention-deficit/hyperactivity disorder (ADHD). They may also struggle with the lifestyle restrictions epilepsy can cause. A therapist can help your child learn to cope with these conditions.
Chris says joining a support group can also help kids with epilepsy — and their families — learn how to adjust to living with epilepsy. …
I’ve been a music therapist at Boston Children’s for two years now. I always wanted to do philanthropic work my whole life, so this is an opportunity where I can use my musical talents for good. It’s a blessing to be here.
Music therapy is the utilization of music to achieve a non-musical goal — that might be bringing family members together, preparing a child for surgery or regulating a heart rate.
Every one of us is musical, so I try to draw the music out of people. I’ve seen kids speak their first words and move their arms and legs for the first time in music therapy sessions. It’s phenomenal.
I work with children all across the hospital and our satellites. It’s been wonderful seeing patients like Joy who show remarkable response to the therapeutic medium of music. I speak for all four music therapists here when I say that the person we’re working with is — in that moment — the most important person in the whole world.
Caring for patients is a true team effort. Care Team highlights the dedication of the people throughout Boston Children’s who do their part to comfort and support patient families each and every day.