Author: Kasey Edwards

SPG47 research brings hope to families

Robbie and Molly, who both have SPG 47, hang out on a bench at Disney World
Robbie and Molly [PHOTOS COURTESY OF KASEY EDWARDS]

“Mama Kasey — I spy!” I smile. Robbie wants to play “I spy with my little eye.” She’s actually quite good and relishes the enthusiasm she gets when she’s right. In fact, recently, we were with someone who was unfamiliar with the routine. After Robbie answered correctly, she waited. Though complimented, it wasn’t enough. Robbie gently took this woman’s hand, looked her in the eye and said, “clap.”

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