Author: Jessica Cerretani

Life after stroke: Rebecca’s fierce determination

rebecca at a baseball game the year before she had a stroke
PHOTOS COURTESY OF THE GOLD FAMILY

Last July, Rebecca Gold’s parents, Karen and Adam, had just dropped her off at sleepaway camp in Pennsylvania. They hadn’t even completed the drive back to Connecticut when they received a frightening call: Their 12-year-old daughter had collapsed to the floor, vomiting and unable to move her limbs. She was now at a nearby children’s hospital in Delaware. After packing overnight bags and picking up their son, Jeremy, the couple turned around and headed back to meet Rebecca. “We didn’t realize it then, but we were leaving our home in Connecticut for good,” says Karen.

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More than just a cough: Advocating for Jack

jack plays during an appointment for tracheobronchonmalacia
PHOTOS: MICHAEL GODERRE/BOSTON CHILDREN’S HOSPITAL

By the time he was 2 years old, Jack Baker had made some 20 trips to the emergency department and had been hospitalized about 10 times. For much of his young life, the little boy had struggled with a cough that his parents, Katie and Rick, could only describe as a barking, seal-like noise. He was often sick with colds, couldn’t sleep for all the coughing, had shortness of breath and wheezing, and had started developing a blue tinge around his mouth.

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Stories from the transplant journey

Erin, a heart recipient, kisses her fiance
PHOTO COURTESY OF ERIN

On April 11, transplant recipients and their families gathered at Boston Children’s Hospital to speak about their transplant journeys during a special nursing grand rounds. As Donate Life Month draws to a close, we share excerpts from their stories, made possible #becauseofadonor.

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Support for midaortic syndrome: Christopher’s story

boy with midaortic syndrome
PHOTOS: COURTESY OF THE HUGHES FAMILY.

Lori Hughes wants people to know about midaortic syndrome. She talks to friends, family and teachers, and even runs a private Facebook group called MAS Kids for families dealing with this rare condition. “I remember how I felt 10 years ago,” she says. “It’s good for parents to be able to share their stories and connect with each other.”

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