Author: Jessica Cerretani

Paying it forward: Care for son’s craniosynostosis spurs mom to run marathon

craniosynostosis

Will Flanigan can’t stop giggling. Whether he’s teasing his older sister, Spencer, or charming his way out of trouble with his parents, this toddler “is always cracking himself — and us — up,” says his mother, Caroline. “We call him Will the Thrill.”

On April 17, 2017, Will brought his good humor from his home in Dallas to the Boston Marathon finish line, where he joined his family in cheering on Caroline as she ran. But this wasn’t just any race. Caroline was running with Boston Children’s Hospital’s Miles for Miracles team for a very special reason: Almost exactly a year earlier, Will was a patient at Boston Children’s.

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Step by step: Sloane’s incredible journey with laryngeal cleft

laryngeal cleft treatment

Like most first graders, Sloane has a jam-packed schedule, filled with fun activities such as dancing, ice skating and playing tennis. But every now and then, this busy girl needs to take a break, even if that simply means taking her time to sip a glass of water. “I remind her that, sometimes, she needs to slow down,” says her mom, Tarra.

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Trusting their instincts: Family finds help for laryngeal cleft

laryngeal cleft treatment

For some kids, the hospital can be a scary place, where even doctors with the best intentions poke, prod and serve up yucky-tasting medication. But for three-year-old Jack Steinberg, a visit to Boston Children’s Hospital is worth the trip from his home in Great Neck, New York. “No, it’s really fun,” Jack’s mother, Jessica, recently overheard him telling his older brother, Henry, who isn’t a fan of doctor visits. “They give you toys and stickers there!”

Jack’s cheerful attitude seems at odds with his recent health challenges. In fact, says his father, Noah, “If you saw him walking down the street, you’d never know anything was wrong with him.”

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Superhero Joey: Five-year-old fights moyamoya disease

fighting moyamoya disease

It’s been said that not all heroes wear capes — but Joey Gallagher owns several. The five-year-old has already amassed a collection of superhero gear, from a Superman Halloween costume to a t-shirt emblazoned with the Batman logo. Yet even the most diehard comic book fan would likely admit that feats like flying, leaping tall buildings and fighting bad guys don’t hold a candle to the challenges this little boy has already surmounted.

Just last June, Joey was out of town with his family when he had what his parents, Leila and Scott, feared was a seizure. Clinicians in the emergency department dismissed the event as heat exhaustion in the athletic, seemingly healthy boy. But it wasn’t long before he experienced another, full-blown, seizure during a tee-ball game back home in Kansas City.

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