Author: Ellen Greenlaw

Tyler’s story: Moving toward a new future with Spinraza

Tyler, who has SMA, rides a ski lift on a recent ski trip. Tyler Hansen was always a happy child, but also a little clumsy. At first, his parents didn’t think too much about it.

“Tyler’s the youngest of four,” explains his dad, Doug. “The oldest two are tall and sprouted early, so they were both kind of awkward and clumsy. We assumed it was the same with Tyler, that he was just going through a growth spurt.”

But after a while, they started to become concerned. Something seemed different about Tyler’s clumsiness, and Doug noticed he had an awkward way of running. They took him to their pediatrician and voiced their concerns.

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Celebrating six: Stories of inspiring hearts

Sonia, who was born with congenital heart disease, dances onstage.

February is American Heart Month. Join us in celebrating our team members whose personal experiences led them to Boston Children’s Hospital Heart Center and honoring our patients whose care led them to pay it forward. From our hearts, to yours.

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A first birthday made possible by cardiac tumor surgery

Oliver, who had a cardiac tumor, plays in the snow.Today is Oliver Cameron’s first birthday and he and his parents have a lot to celebrate. After a year of uncertainty, they will be enjoying a quiet dinner with family at their home in Wantage, a town in Oxfordshire, England.

“Having him home and healthy is the best present ever,” says his mom, Lydia.

She and her husband, Tim, are looking forward to some quiet time alone with Oliver and their family after spending much of the last year fighting for his life.

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Surgery to remove blood clot saves London’s kidneys

London, who had a large blood clot in her aorta, recovers after surgery.Todd and Lindsey Taylor had barely settled in at home in Syracuse, New York with their new baby, London, when their world turned upside down.

London, who had seemed perfectly healthy at birth, woke up nine days later vomiting and struggling to breathe. They rushed her to their local children’s hospital.

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