Author: Ellen Greenlaw

Sonia’s story: Saving hearts a world away

ALL PHOTOS: COURTESY OF THE GEAMBASU/CONOVARU FAMILY

When Sonia Conovaru was born in Romania in 2007 with a number of complex congenital heart defects, she was given a 10 percent chance of living 12 months. Her mom, Oana Geambasu, a young acting student, didn’t know anything about health care, but knew she wasn’t willing to accept that outcome. It was the start of a journey that would take them thousands of miles and forever change the course of their lives.

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Against all odds: Colin’s biventricular repair

Colin, who had a biventricular repair, climbs onto the table during his office visit.

Catherine and Julio Pita were already seasoned parents when they learned they were expecting their sixth child. But when an ultrasound at Catherine’s 16-week prenatal visit showed their baby had a hole in his heart, they were surprised and unprepared.

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Summer movie safety: What parents of kids with epilepsy should know

People sitting in a dark theater

If you’re headed to the movies over this holiday week, a word of caution about the popular Disney sequel Incredibles 2. Earlier this month, the Epilepsy Foundation issued a statement about the film, warning that some people have had seizures while watching the movie. In response, some movie theaters have posted warnings about the film.

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Family Advocacy Day: Three families take their stories to Congress

Nova, who has Pfieffer syndrome, walks through a park.
Nova is taking her story to Congress

Later this June, three patients from Boston Children’s Hospital will be joining other kids and young adults from across the country at the 2018 Speak Now for Kids Family Advocacy Day in Washington, D.C. During their visit, they will share their stories with Congress and ask them to protect all children’s access to health care.

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