Author: Christina Poce

The five emotions of raising a child with infantile scoliosis

Avery, who has infantile scoliosis, with his brace

One night, while doing our son’s usual bath routine, I saw what looked like a hump on his back. Avery was 6 months old at the time. At first, I thought that it was just something I was imagining, but the hump never went away. In fact, it seemed to get worse. When Avery was 13 months old, he was officially diagnosed with infantile scoliosis, a rare form of scoliosis that occurs in children under 2 years of age.

The first hospital we were referred to would not even consider treating Avery until he was at least 18 months, and that was not a guarantee, so after doing some research, we came to Boston Children’s Hospital for a second opinion. We were referred to Dr. Michael Glotzbecker, one of the surgeons in the Spinal Program at Boston Children’s Orthopedic Center that specializes in early onset scoliosis.

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